A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale

Renal Failure
Maria E FerrisStephen R Hooper

Abstract

To describe the development of the University of North Carolina (UNC) TR(x)ANSITION Scale that measures the health-care transition and self-management skills by youth with chronic health conditions. Item and scale development of the UNC TR(x)ANSITION Scale was informed by two theoretical models, available literature, and expert opinion interviews and feedback from youth with chronic conditions, their parents, and interdisciplinary collaboration. Through an iterative process, three versions of the scale were piloted on a total of 185 adolescents and emerging adults with different chronic illnesses. This clinically administered scale relies on a semi-structured interview format of the patient and does not rely solely on patient report, but is verified with information from the medical record to validate responses. Following the item development and the three iterations of the scale, version 3 was examined in a more intensive fashion. The current version of the UNC TR(x)ANSITION Scale comprises 33 items scattered across the following 10 domains: Type of illness, Rx=medications, Adherence, Nutrition, Self-management, Informed-reproduction, Trade/school, Insurance, Ongoing support, and New health providers. It requires approximately...Continue Reading

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