A comparative study of educational provision for children with neurogenetic syndromes: parent and teacher survey

Journal of Intellectual Disability Research : JIDR
C ReillyL Murtagh

Abstract

A number of neurogenetic syndromes have a high association with special educational needs including fragile X syndrome (FXS), Prader-Willi syndrome (PWS), Williams syndrome (WS) and Velo-Cardio-Facial syndrome (VCFS). There is a paucity of research on educational provision for children affected by these syndromes. Parents (n = 381) and teachers (n = 204) of school-aged children with one of the four syndromes in the UK and Ireland were surveyed in a range of areas concerning the child's educational provision. Areas surveyed included school placement, views on the needs of children with the syndromes, desired changes to current provision and perceived teacher knowledge. School placement in mainstream settings decreased with age in all of the syndromes. Males with the syndromes were more likely to be in specialised educational settings with the exception of WS. Teachers reported limited input on initial or subsequent training for all of the syndromes. The majority of teachers did not view the needs of children with syndromes as different from other children with intellectual disability (ID) although there were significant differences between the syndromes. Changes deemed necessary to provision by parents and teachers differed betw...Continue Reading

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Citations

May 2, 2018·Journal of Speech, Language, and Hearing Research : JSLHR·Sonia GranlundMerle Mahon
May 31, 2019·Journal of Autism and Developmental Disorders·Dajie ZhangChrista Einspieler
Nov 10, 2017·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Wendy CohenLisa Crampin
Apr 14, 2018·Journal of Autism and Developmental Disorders·Olympia PalikaraJo Van Herwegen
Apr 26, 2021·Social Science & Medicine·Maya SabatelloPaul S Appelbaum
Jun 19, 2021·Nature Reviews. Disease Primers·Beth A KozelBarbara R Pober

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