A Comprehensive Model of Factors Associated With Capability to "Live Well" for Family Caregivers of People Living With Mild-to-Moderate Dementia: Findings From the IDEAL Study

Alzheimer Disease and Associated Disorders
Linda ClareIDEAL Study Team

Abstract

Understanding key influences on outcomes for caregivers of people with dementia is hampered by inconsistent conceptualization and measurement of outcomes and limited evidence about the relative impact of different variables. We aimed to address these issues. We analyzed data from 1283 caregivers of community-dwelling individuals with mild-to-moderate dementia in the Improving the experience of Dementia and Enhancing Active Life cohort study. We generated a "living well" latent factor from measures of quality of life, satisfaction with life, and well-being. We used structural equation modelling to derive latent variables for 7 domains reflecting caregivers' perceptions of their personal resources and experiences, and to examine the associations with caregivers' perceptions of their capability to "live well." The domain of psychological characteristics and psychological health was most strongly related to living well [2.53; 95% confidence interval (CI), 2.08-2.97], followed by physical fitness and physical health (1.48; 95% CI, 1.04-1.91) and experiencing caregiving (1.34; 95% CI, 0.99-1.70). Social capitals, assets and resources (0.68; 95% CI, 0.35-1.00) and relationship with the person with dementia (-0.22; 95% CI, -0.41 to -0....Continue Reading

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Citations

Nov 7, 2018·International Journal of Behavioral Medicine·Satoko FujiharaKatsunori Kondo
Nov 14, 2019·Alzheimer's & Dementia : Translational Research & Clinical Interventions·Catherine HendersonUNKNOWN IDEAL Programme Team
May 13, 2020·Journal of Applied Gerontology : the Official Journal of the Southern Gerontological Society·Rachel ClarkeUNKNOWN IDEAL program team
Aug 9, 2020·Journal of Geriatric Psychiatry and Neurology·Marcia Cristina Nascimento DouradoDaniel C Mograbi
Oct 27, 2020·Journal of Alzheimer's Disease : JAD·Linda ClareChristina Victor
Sep 27, 2021·International Journal of Geriatric Psychiatry·Catherine QuinnUNKNOWN On behalf of the IDEAL Programme Team

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