A conceptual model of treatment burden and patient capacity in stroke

BMC Family Practice
Katie I GallacherFrances S Mair

Abstract

Treatment burden is the workload of healthcare experienced by those with long-term conditions and the impact that this has on well-being. Treatment burden can negatively impact on quality of life and adherence to treatments. Individuals are likely to differ in their ability to manage health problems and follow treatments, defined as patient capacity. This has been under investigated in stroke. The aim of this paper is to create a conceptual model of treatment burden and patient capacity for people who have had a stroke through exploration of their experiences of healthcare. Interviews were conducted at home with 29 individuals who have had a stroke. These were recorded and transcribed verbatim. Fifteen explored treatment burden and were analysed by framework analysis underpinned by Normalisation Process Theory (NPT). Fourteen explored patient capacity and were analysed by thematic analysis. Taxonomies of treatment burden and patient capacity were created and a conceptual model produced. Mean age was 68 years. Sixteen were men and 13 women. The following broad areas of treatment burden were identified: making sense of stroke management and planning care; interacting with others including health professionals, family and other st...Continue Reading

References

Aug 13, 2009·BMJ : British Medical Journal·Carl MayFrances S Mair
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Citations

Sep 20, 2019·BMJ Open·Katie I GallacherFrances Mair
Nov 30, 2018·BMC Family Practice·Rune Aakvik PedersenIrene Hetlevik
Jun 25, 2019·Stroke; a Journal of Cerebral Circulation·Katie I GallacherFrances S Mair
Jun 3, 2020·Journal of Medical Internet Research·Kathleen YinAnnie Y S Lau
Oct 23, 2020·PloS One·Natasha C H TingClaudia C Dobler
Dec 1, 2020·Journal of Stroke and Cerebrovascular Diseases : the Official Journal of National Stroke Association·Teresa UllbergHélène Pessah-Rasmussen
Mar 6, 2021·PloS One·Monika Dybdahl JakobsenBirgit Abelsen
Nov 14, 2020·Journal of Palliative Medicine·Alina SiddiquiClaire K Ankuda
Apr 5, 2021·Journal of Cancer Survivorship : Research and Practice·Gemma McErleanIan Kerridge
Apr 21, 2021·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·James E MorrisSimon Ds Fraser
May 7, 2021·Health & Social Care in the Community·Rachel QuigleyCarolyn Ehrlich
May 13, 2021·Revista da Escola de Enfermagem da U S P·Pollyanna Bahls de SouzaVanêssa Piccinin Paz
Dec 5, 2021·BMJ : British Medical Journal·Tessa Richards

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