Apr 23, 2005

A difference in perception of quality of life in chronically ill children was found between parents and pediatricians

Journal of Clinical Epidemiology
Arieke J JanseG Sinnema


Quality of life measurements can help to estimate the well-being of chronically ill patients, and disclose discrepancies in perception between physicians and patients that might otherwise interfere with the effectiveness of treatment. The objective was to investigate the differences in perception of quality of life between parents of chronically ill children and pediatricians. A cross-sectional study was conducted in four tertiary pediatric care centers in The Netherlands. The Health Utilities Index mark 3 (HUI3) was used by 37 pediatricians and 279 parents of patients (children aged 1 to 17 years) with cystic fibrosis admitted either in daycare or for a pneumonia, or patients with newly diagnosed acute lymphoblastic leukemia, juvenile idiopathic arthritis, or asthma. Differences in perception of quality of life between parents and pediatricians appeared to be dependent of the disease. In patients with acute lymphoblastic leukemia (OR 7.4; [95% CI 2.88-18.97], juvenile idiopathic arthritis (4.7; [95% CI 2.00-11.22]), and asthma (2.3; [95% CI 1.13-4.69]) a difference in perception was more likely to occur than in patients with cystic fibrosis admitted in daycare. At the onset of a chronic disease, the parents of pediatric patien...Continue Reading

  • References7
  • Citations36


  • References7
  • Citations36


Mentioned in this Paper

Prevalence Studies
Leukemia, Lymphocytic, Acute, L2
Chronic Disease
Cystic Fibrosis
Pediatric Discipline
Social Perception

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