A difficult conversation? The views and experiences of parents and professionals on the consent process for perinatal postmortem after stillbirth

BJOG : an International Journal of Obstetrics and Gynaecology
Alexander E P HeazellSoo Downe

Abstract

To describe the experiences, knowledge and views of both parents and professionals regarding the consent process for perinatal postmortem. Internet-based survey. Obstetricians, midwives and perinatal pathologists currently working in the UK. Parents who have experienced a stillbirth in the UK in the previous 10 years. Obstetricians, midwives and perinatal pathologists registered with their professional bodies. Parents who accessed the Sands website or online forum. Online self-completion questionnaire with both fixed-choice and open-ended questions. Responses were analysed from 2256 midwives, 354 obstetricians, 21 perinatal pathologists and 460 parents. The most common reason for parents to request postmortem examination was to find a cause for their baby's death; the prevention of stillbirths in others also ranked highly. Perinatal pathologists possessed greatest knowledge of the procedure and efficacy of postmortem, but were unlikely to meet bereaved parents. The majority of professionals and parents ranked emotional distress and a lengthy wait for results as barriers to consent. The majority of staff ranked workload, negative publicity, religion and cultural issues as important barriers, whereas most parents did not. Almost ...Continue Reading

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