A difficult transition from childhood to adult healthcare: the case of epilepsy

Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie
A-O AffdalG Moutel

Abstract

The purpose of this study was to analyze modalities of the transition from pediatric to adult epilepsy care and patients' acquisition of autonomy. This study was conducted using semidirected interviews composed of three major parts: the patient's criteria of transition toward adult healthcare (factors taken into account, anticipation, the patient's opinion, etc.), conditions (teamwork with the neurologists, transmission of the medical record, continuity of health care, etc.), and the role played by social workers and psychologists. We interviewed 10 doctors belonging to six major Parisian hospital units involved in the monitoring of children and adolescents with epilepsy and working in Pediatric Neurology Departments of the Île-de-France region. For most of the doctors, reaching 18 years of age was the major argument taken into account to consider transition to adult care. According to the doctors interviewed, parents are generally worried when their child has to find another doctor (7/10). According to eight out of 10 doctors, the neurologist is selected to take over. The doctors recognize the importance of psychologists and social workers even if they are not always included. The process by which the patient gains autonomy de...Continue Reading

References

Jun 23, 2009·Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie·F BrémontM Murris
Mar 11, 2011·Archives of Disease in Childhood·R CrowleyM McKee
Jun 15, 2012·Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie·D GrenetM Stern
Nov 20, 2013·International Journal of Obesity : Journal of the International Association for the Study of Obesity·V A ShrewsburyK S Steinbeck

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