A holistic intervention programme for families with a child with a disability

Journal of Advanced Nursing
Diane Pelchat, Helene Lefebvre

Abstract

The birth of a child with a disability may cause serious stress for the parents and affect each member of the family. Parents need support to deal with such a situation; however, health care professionals themselves are not always well equipped to help them and often adopt an attitude of withdrawal. The aim of this paper is to describe a family intervention programme developed in collaboration with families who were adapting to the birth of a child with a disability. The primary purpose of the programme is to help family members adapt to the situation in which they suddenly find themselves, primarily by reducing stress. The family's autonomy and competencies in providing care for the child are promoted and called into action. The programme encompasses different aspects of family relations: the individual, marital, parental, family, extended family and non-family sub-systems. Its theoretical foundations, clinical experience with families of a child with a health problem, and our previous research have enabled a remodelled vision of the way individuals and families adapt to such a situation. The symbioses of the design of the programme, training in its application, and intervention itself have transformed families of a child with...Continue Reading

References

Feb 1, 1981·American Journal of Community Psychology·J Rappaport

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Citations

Apr 8, 2010·Disability and Rehabilitation·Ersin Uskun, Duru Gundogar
Aug 28, 2012·Journal of Pediatric Nursing·Margaret W Bultas
Oct 25, 2007·Journal for Specialists in Pediatric Nursing : JSPN·Esine Sen, Sabire Yurtsever
Oct 16, 2013·Journal for Specialists in Pediatric Nursing : JSPN·Elisabeth BruceKarin Sundin
Oct 10, 2015·Qualitative Health Research·Ragnhild B HåkstadGunn Kristin Øberg
Sep 2, 2006·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Mathilde Azar, Lina Kurdahi Badr
May 15, 2007·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Diane PelchatMarie-Josée Levert
Oct 24, 2006·Clinical Nursing Research·Maria Ojmyr-JoelssonKyllike Christensson
Aug 29, 2009·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Diane PelchatValérie Bourgeois-Guérin
Apr 10, 2007·Qualitative Health Research·Jane H LassetterSusanne Olsen Roper
Jun 21, 2007·Journal of Trauma Nursing : the Official Journal of the Society of Trauma Nurses·Hélène LefebvreMarie-Josée Levert
Mar 7, 2020·Journal of Reproductive and Infant Psychology·Bárbara Nazaré, Ana Fonseca

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