A parent's perspective on dietary treatments for epilepsy

Epilepsy Research
Emma WilliamsGerry Harris

Abstract

Four families gave their accounts of the how Dietary Therapies had impacted on their lives and that of their children who suffered with intractable epilepsy. All with very different stories, experiences and outcomes. Niamh was diagnosed with migrating partial epilepsy of infancy with an underlying metabolic problem was fed via her jejunostomy and the parents overcame every obstacle in their path to have as much time with their daughter as possible. Niamh's family now work with the Matthew's Friends organization to promote dietary awareness and make these treatments available for all those who need them. Carson, who with infantile spasms, was able to access the diet as her first line treatment without any medication being taken. Carson is the inspiration behind the Carson Harris Foundation and her family promote dietary awareness in USA. Matthew, with Dravet Syndrome, was refused for the diet for years, suffered brain damage and was put on a whole host of unsuitable medications before finally managing to get the diet. The diet proved his saving but what could have been the outcome if the family had got the diet when it was first asked for? Matthew is the inspiration behind the Matthew's Friends - Dietary Treatments for Epilepsy ...Continue Reading

Associated Clinical Trials

Jul 14, 2015·Ryan Lee, MD

Citations

Nov 18, 2016·Journal of Health Psychology·Angelica M RoncancioFelicity L Cribbs

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