A Participatory Design Approach to Develop a Web-Based Self-Care Program Supporting Early Rehabilitation among Patients after Total Laryngectomy

Folia Phoniatrica Et Logopaedica : Official Organ of the International Association of Logopedics and Phoniatrics (IALP)
Ingrid C CnossenIrma M Verdonck-de Leeuw

Abstract

To develop a Web-based self-care program for patients after total laryngectomy according to a participatory design approach. We conducted a needs assessment with laryngectomees (n = 9) and their partners (n = 3) by means of a focus group interview. In 4 focus group sessions, a requirement plan was formulated by a team of health care professionals (n = 10) and translated into a prototype. An e-health application was built including illustrated information on functional changes after total laryngectomy as well as video demonstrations of skills and exercises. Usability of the prototype was tested by end users (n = 4) and expert users (n = 10). Interviews were held to elicit the intention to use and the desired implementation strategy. Six main self-care topics were identified: (1) nutrition, (2) tracheostomy care, (3) voice prosthesis care, (4) speech rehabilitation, (5) smell rehabilitation, and (6) mobility of head, neck, and shoulder muscles. Expert users expressed concerns regarding tailored exercises, indicated a positive intent to implement the intervention in routine care, and expressed a need for guidance when implementing the intervention. End users and expert users appreciated the content completeness and multimedia-base...Continue Reading

Citations

Feb 14, 2018·International Journal of Environmental Research and Public Health·Pernille Ravn JakobsenJane Clemensen
Nov 22, 2018·Head & Neck·Femke JansenIrma Maria Verdonck-de Leeuw
Apr 18, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Cornelia F van Uden-KraanIrma M Verdonck-de Leeuw
Jul 17, 2020·Frontiers in Neurology·Isabel VoigtTjalf Ziemssen
Jun 9, 2021·Journal of Clinical Nursing·Sílvia Maria Moreira QueirósCélia Samarina Vilaça de Brito Santos

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