PMID: 11901968Mar 21, 2002Paper

A patient-derived perspective of health-related quality of life with peripheral arterial disease

Journal of Nursing Scholarship : an Official Publication of Sigma Theta Tau International Honor Society of Nursing
D Treat-JacobsonA T Hirsch

Abstract

To evaluate the effects of peripheral artery disease (PAD) on health-related quality of life (HRQoL) from the patient's perspective to establish a foundation for systematic PAD-specific HRQoL assessment in this population. Grounded theory methodology. Open-ended, tape-recorded interviews were conducted with 38 patients (24 men, 14 women) 44 to 83 years old (mean 65) from two US medical centers to report patient experience of PAD and its perceived effects on HRQoL. Tapes were transcribed and analyzed to identify themes and conceptual domains pertinent to the experience of PAD in this population. Seven major themes were identified: (a) delay in diagnosis and frustration with management of disease; (b) pain; (c) limitation in physical functioning; (d) limitation in social and role functioning; (e) compromise of self; (f) uncertainty and fear; and (g) adaptation to the effects of the disease and demonstration of resiliency. These findings indicate important psychosocial and emotional consequences of PAD that existing HRQoL questionnaires do not indicate. More complete data might lead to greater understanding of the effects of PAD, serving as the foundation for a more sensitive instrument to assess HRQoL as a basis for more effectiv...Continue Reading

Citations

Jun 21, 2007·International Journal of Technology Assessment in Health Care·Kirsi KoivunenHannele Lukkarinen
Dec 13, 2002·The New England Journal of Medicine·Kerry J StewartAlan T Hirsch
Nov 15, 2008·Journal of Cardiopulmonary Rehabilitation and Prevention·Andrew W Gardner, Azhar Afaq
May 13, 2011·Nursing Research·Diane Treat-JacobsonGeorge A Henly
Aug 7, 2010·BMC Cardiovascular Disorders·Claudio CimminielloUNKNOWN PANDORA Study Investigators
Nov 19, 2013·Journal of Vascular Nursing : Official Publication of the Society for Peripheral Vascular Nursing·Maud LundénMargret Lepp
Feb 11, 2012·Journal of Vascular Nursing : Official Publication of the Society for Peripheral Vascular Nursing·Louise EgbergAnne-Cathrine Mattiasson
May 25, 2010·Journal of Vascular Nursing : Official Publication of the Society for Peripheral Vascular Nursing·Louise EgbergJohan Styrud
Nov 17, 2009·Journal of Vascular Nursing : Official Publication of the Society for Peripheral Vascular Nursing·Sara Tomczyk, Diane Treat-Jacobson
Dec 5, 2006·Journal of Vascular Nursing : Official Publication of the Society for Peripheral Vascular Nursing·Kirsi Koivunen, Hannele Lukkarinen
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