A possibility for strengthening family life and health: Family members' lived experience when a sick child receives home care in Sweden

Health & Social Care in the Community
Charlotte CastorInger Kristensson Hallström

Abstract

Families often prefer home care to hospital care, and home-care services for ill children are increasing worldwide with limited knowledge of families' needs during curative and palliative home care. The aim of this study was to elucidate family members' lived experience when a sick child received home care from county-based primary healthcare services. A descriptive qualitative design was chosen and 12 families including sick children receiving home care and their mothers, fathers and siblings in the south of Sweden were interviewed between December 2015 and January 2017. The transcribed interviews were analysed using a hermeneutic phenomenological approach. The family members' lived experience was described in three essential themes: "Strengthening family life" relates to how home care induced freedom and luxury in a strained period of life and supported the families' everyday life. Usual social activities and relations were maintained as time and energy was saved when receiving home care. "Promoting health" relates to how the family members' burden of illness decreased as the child's signs of illness alleviated and the well-being of the whole family increased when the child received care in the home. This provided a peaceful ...Continue Reading

References

Oct 1, 1966·Comprehensive Psychiatry·M Bowen
Jul 1, 1994·Journal of Substance Abuse Treatment·K J Miller
Apr 24, 2004·Child: Care, Health and Development·S Kirk, C Glendinning
Apr 20, 2005·Journal international de bioéthique = International journal of bioethics·UNKNOWN World Medical Association General Assembly
Jun 28, 2005·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·N M Byrne, L Hardy
Jul 29, 2005·Health & Social Care in the Community·Janet HeatonRobina Shah
Oct 4, 2005·Pediatric Blood & Cancer·Bonnie StevensMark Greenberg
Oct 12, 2005·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Krista L Wilkins, Roberta L Woodgate
Aug 12, 2006·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Bonnie StevensIris Epstein
May 24, 2007·International Journal of Nursing Practice·Inger Hallström, Gunnel Elander
Jan 9, 2008·Archives of Pediatrics & Adolescent Medicine·David Wendler, Tammara Jenkins
Sep 29, 2009·Journal of Pediatric Nursing·Maria BjörkInger Hallström
Mar 2, 2010·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Margaret E WilsonKimberly L Carlson
Mar 1, 2011·Palliative & Supportive Care·Gian Domenico Borasio
Jun 1, 2011·Health & Social Care in the Community·Gemma SpiersKarl Atkin
Jan 17, 2012·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Kiran Pohar Manhas, Ian Mitchell
Aug 21, 2012·International Journal of Qualitative Studies on Health and Well-being·Else Mari Ruberg Ekra, Eva Gjengedal
Aug 28, 2012·Journal of Pediatric Nursing·Ann P AschenbrennerRuth Ann Belknap
Jan 8, 2013·Journal for Specialists in Pediatric Nursing : JSPN·Barbara Mandleco
May 8, 2013·Health & Social Care in the Community·Juliana G BarnardMark A Erickson
Aug 9, 2013·Developmental Neurorehabilitation·Stefan NilssonSara Hvit
Jan 28, 2014·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Inge SchalkersJoske F G Bunders
Jul 7, 2014·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Laura DarcySusanne Knutsson
Jan 15, 2015·Nurse Researcher·Lisa S Whiting
Feb 5, 2015·Journal of Developmental and Behavioral Pediatrics : JDBP·Melanie NoelKang Lee
Mar 13, 2015·Qualitative Health Research·Carina Sparud-Lundin, Inger Hallström
Apr 17, 2015·Journal of Clinical Nursing·Sarah SamuelsonEwa-Lena Bratt
Sep 2, 2015·Nursing Research·Charlotte AngelhoffEvalotte Mörelius
Oct 2, 2015·The American Journal of Hospice & Palliative Care·LeeAi Chong, Adina Abdullah
Dec 17, 2015·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Patricia A BranowickiAmanda J Lulloff
May 4, 2016·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Imelda CoyneMaja Söderbäck
Mar 23, 2017·Journal of Advanced Nursing·Katri EskolaEva Cignacco
Mar 24, 2017·Journal of Clinical Nursing·Charlotte CastorKajsa Landgren

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Citations

Mar 14, 2019·Scandinavian Journal of Caring Sciences·Charlotte CastorHelena Hansson
Jan 28, 2020·Scandinavian Journal of Caring Sciences·Charlotte CastorInger Kristensson Hallström
Apr 18, 2019·Current Infectious Disease Reports·Sanjay Patel, Helen Green
Jul 3, 2021·International Journal of Environmental Research and Public Health·Malin de FlonStefan Nilsson

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