A qualitative exploration of the content and face validity of preference-based measures within the context of dementia

Health and Quality of Life Outcomes
Lidia EngelLisa Hanna

Abstract

Assessing the cost-effectiveness of interventions for people with dementia, based on cost per quality-adjusted life years (QALYs) gained, requires that the measures used to derive QALYs are preference-based whilst also being valid, feasible to use, comprehensible and acceptable for people with dementia. The aim of this study was to assess the content and face validity of six preference-based measures (PBMs) within the context of dementia. Qualitative focus groups and interviews were conducted with community-dwelling individuals with mild dementia and carers of people with dementia. After exploring participants' understanding of 'quality of life' (QoL), six PBMs were assessed for content and face validity: two measures assessing health-related QoL (EQ-5D-5L and AQoL-8D); two covering broader aspects of capability wellbeing and social care-related QoL (ICECAP-O and ASCOT); and two dementia-specific QoL measures (DEMQOL-U and AD-5D). A random mix of one health-related QoL measure, one wellbeing measure, and one dementia-specific measure was explored in each session. All sessions were audiotaped and transcribed verbatim. Data were analysed thematically. Nine individuals with mild dementia and 17 carers of people with dementia parti...Continue Reading

References

Sep 1, 1984·Journal of Medical Ethics·K C Calman
May 11, 2002·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Michel SilberfeldGary Naglie
May 29, 2003·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jared B Jobe
Mar 18, 2004·International Journal of Geriatric Psychiatry·Rebecca E ReadyJanet Grace
Mar 26, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·S BryanA Laight
Jun 16, 2007·Health and Quality of Life Outcomes·Claire A G WolfsJohan L Severens
Sep 18, 2007·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Allison TongJonathan Craig
Jun 24, 2008·Social Science & Medicine·Joanna CoastTim J Peters
Jul 18, 2008·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Jason H KarlawishHenry A Glick
Jul 18, 2008·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Jason H KarlawishHenry A Glick
Jul 1, 2007·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Elias M SchwamHoward Fillit
Aug 27, 2009·BMC Neurology·Matthias W RiepeMatthias Graf von der Schulenburg
Sep 29, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Meryl BrodTorsten L Christensen
Feb 20, 2010·Journal of the American Geriatrics Society·Carla J M Schölzel-DorenbosPaul F M Krabbe
Mar 16, 2011·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Natalia HounsomeRhiannon Tudor Edwards
Apr 12, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·M HerdmanX Badia
Mar 22, 2012·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Brendan MulhernSube Banerjee
Mar 22, 2012·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Donna RowenJohn E Brazier
Mar 31, 2012·Health Technology Assessment : HTA·A NettenB Wall
Dec 19, 2012·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Katherine Stevens, Simon Palfreyman
Feb 14, 2013·Expert Review of Pharmacoeconomics & Outcomes Research·Wendy Moyle, Jenny E Murfield
May 2, 2013·Social Science & Medicine·Hareth Al-JanabiJoanna Coast
Sep 10, 2013·BMC Medical Research Methodology·Alexander M M AronsMarcel G M Olde Rikkert
Feb 26, 2014·International Psychogeriatrics·Kenneth RockwoodPaige Moorhouse
Apr 11, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jeff RichardsonMunir A Khan
Apr 25, 2014·The European Journal of Health Economics : HEPAC : Health Economics in Prevention and Care·Peter MakaiIsabelle Fabbricotti
Nov 12, 2014·Medical Decision Making : an International Journal of the Society for Medical Decision Making·Donna RowenJohn E Brazier
Oct 8, 2016·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Milad KarimiHasan Basarir
Oct 26, 2016·Journal of Applied Research in Intellectual Disabilities : JARID·Agnes TurnpennyStacey Rand
Jan 10, 2017·PloS One·Carmen M Sarabia-CoboMiguel Santibáñez-Margüello
Jan 27, 2017·Health and Quality of Life Outcomes·Kim-Huong NguyenTracy Comans

❮ Previous
Next ❯

Citations

Feb 8, 2022·Health Technology Assessment : HTA·Philippa A LoganErika J Sims

❮ Previous
Next ❯

Software Mentioned

Adult Social Care Outcomes Toolkit ( ASCOT )
NVivo
ICECAP
ASCOT
CUA
ICEpop
DEMQOL
AD
QOL

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Teake P EttemaMiel W Ribbe
The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques
Gary Naglie
Dementia and Geriatric Cognitive Disorders
C JonkerJ T Van Der Steen
© 2022 Meta ULC. All rights reserved