A qualitative study exploring stakeholder perspectives on the use of biological samples for future unspecified research in Malawi.

BMC Medical Ethics
Limbanazo MatandikaJoseph Mfutso-Bengo

Abstract

There is growing interest in the collection, storage and reuse of biological samples for future research. Storage and future use of biological samples raise ethical concerns and questions about approaches that safeguard the interests of participants. The situation is further complicated in Africa where there is a general lack of governing ethical frameworks that could guide the research community on appropriate approaches for sample storage and use. Furthermore, there is limited empirical data to guide development of such frameworks. A qualitative study to address this gap was conducted with key stakeholders in Malawi to understand their experiences and perspectives regarding storage and usage of samples for future research. This study conducted 13 in-depth interviews with ethics committee members, regulators and researchers, and five focus group discussions with community representatives and clinical trial participants in Malawi. Interviews and focus group discussions were audio-recorded, transcribed verbatim, and thematically analysed. On the current regulatory guidelines that governs the collection, storage and reuse of samples in Malawi, participants highlighted their different understanding of it, with some indicating that...Continue Reading

References

Oct 30, 2007·BMC Medical Ethics·Ross E G UpshurPaulina O Tindana
Mar 23, 2011·BMC Medical Ethics·Jantina de VriesMichael Parker
Nov 9, 2012·AIDS·Yvonne G De Souza, John S Greenspan
Sep 13, 2013·BMC Medical Ethics·Ciara Staunton, Keymanthri Moodley

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Citations

Mar 27, 2021·PloS One·Ahmed Samir AbdelhafizWalaa A Khairy

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