A report on location of death in paediatric palliative care between home, hospice and hospital

Palliative Medicine
H SidenJ J Collins

Abstract

This retrospective study analysed data for 703 children who died from 2000 to 2006 to examine where children with a broad range of progressive, life-limiting illnesses actually die when families are able to access hospital, paediatric hospice facility and care at home. There was an overall even distribution for location of death in which 35.1% of children died at home, 32.1% died in a paediatric hospice facility, 31.9% in hospital and 0.9% at another location. Previous research suggests a preference for home as the location of death, but these studies have primarily focused on adults, children with cancer or settings without paediatric hospice facilities available as an option. Our results suggest that the choice of families for end-of-life care is equally divided amongst all three options. Given the increasing numbers of children's hospices worldwide, these findings are important for clinicians, care managers and researchers who plan, provide and evaluate the care of children with life-limiting illness.

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Citations

Mar 6, 2013·Journal of Palliative Medicine·Neelam GuptaAlison Shefler
Apr 20, 2013·Archives of Disease in Childhood·Emily ChangRoss Drake
Sep 7, 2013·Journal of Palliative Medicine·Negar ChavoshiHarold Siden
Dec 12, 2012·Seminars in Fetal & Neonatal Medicine·Finella Craig, Alexandra Mancini
Dec 8, 2009·Child: Care, Health and Development·G PoussetL Deliens
Sep 27, 2016·The Journal of Pediatrics·Anthony StainesHelen Whelton
Jun 30, 2010·Health & Social Care in the Community·Melissa GiesbrechtAllison Williams
Dec 25, 2012·The American Journal of Hospice & Palliative Care·Kyusuk Chung, Sloane C Burke
May 27, 2017·International Journal of Palliative Nursing·Lisa C Lindley, Jessica Keim-Malpass
Mar 9, 2012·British Journal of Nursing : BJN·Katie Hill, Imelda Coyne
May 4, 2011·International Journal of Palliative Nursing·Emma C Simpson, Catherine V Penrose
Aug 16, 2011·Dimensions of Critical Care Nursing : DCCN·Brian W Jones
Jul 8, 2010·Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association·Lisa LindleyShoou-Yih Daniel Lee
Mar 26, 2019·Nursing in Critical Care·Kathryn E MortonAnne-Sophie E Darlington
Nov 18, 2018·BMJ Supportive & Palliative Care·Kate RentonDaniel Yeomanson
Jul 25, 2018·The American Journal of Hospice & Palliative Care·Lisa C LindleyDouglas L Leslie
Jun 1, 2015·Neuro-oncology Practice·Charissa T Jagt-van KampenAntoinette Y N Schouten-van Meeteren
Oct 23, 2010·British Journal of Nursing : BJN·Irene O Brien, Anita Duffy
Jul 2, 2020·European Journal of Pediatrics·Sanne Lausen WolffMette Asbjoern Neergaard
May 1, 2021·Children·Taryn SchuelkeMalinda Hill
Sep 5, 2021·European Journal of Pediatrics·Sanne Lausen WolffMette Asbjoern Neergaard
Mar 4, 2017·Pediatrics·Kimberley WidgerPeter Tanuseputro
Aug 27, 2014·Pediatrics·Harold SidenTanice Miller

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