A Roadmap to Survivorship: Optimizing Survivorship Care Plans for Adolescent and Young Adult Cancer Survivors

Journal of Adolescent and Young Adult Oncology
Lynda BeaupinJennifer A Hydeman

Abstract

Young adult cancer patients have complex medical and psychosocial needs throughout treatment. Once treatment ends, few young adult cancer survivors (YACS) receive adequate survivorship care. Many YACS do not continue with oncology care after treatment ends. The purpose of this study was to discover the views YACS held about survivorship care and to design age-appropriate survivorship care plans (SCPs). Twenty-seven YACS (n = 27) participated in a group discussion focusing on their post-treatment experience. The concept of SCPs was introduced and participants provided information on how their care was managed after the completion of their treatment, what factors played a role in their oncological follow-up care, and the potential utility of a SCP in the management of their follow-up survivorship care. SCPs were developed for each participant and feedback requested. SCPs required 45-180 minutes to complete. Barriers to continued follow-up included: loss of health insurance, poor communication with their oncologist once treatment ended, and ongoing adjustment challenges to work, school, and home life. YACS requested more support for psychosocial issues post-treatment, and more information about long- and late-term side effects fro...Continue Reading

References

Dec 1, 1992·Cancer·R E GrayM A Doherty
Nov 17, 1989·JAMA : the Journal of the American Medical Association·J ByrneM J Teta
Jan 1, 1986·Journal of Chronic Diseases·M J TetaJ J Mulvihill
Feb 1, 1997·Journal of Pediatric Psychology·J S PendleyZ Dreyer
May 15, 2004·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Candyce H KroenkeMichelle D Holmes
Sep 26, 2006·Gynecologic Oncology·Theodoros MaltarisHeinz Koelbl
Oct 13, 2006·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Eileen C Duffey-LindElyse R Park
Oct 13, 2006·The New England Journal of Medicine·Kevin C OeffingerUNKNOWN Childhood Cancer Survivor Study
Dec 21, 2007·Cancer Control : Journal of the Moffitt Cancer Center·Hatem Soliman, Samuel V Agresta
Jul 24, 2008·Journal of Cancer Survivorship : Research and Practice·Brad J ZebrackTammy S Weitzman
Jul 24, 2008·Journal of Cancer Survivorship : Research and Practice·Deborah B CromMelissa M Hudson
Sep 25, 2008·Journal of the National Cancer Institute·Ann C MertensYutaka Yasui
Jan 17, 2009·CA: a Cancer Journal for Clinicians·Kathryn RuddyAnn Partridge
Oct 20, 2009·Seminars in Oncology·Brad ZebrackAshley Wilder Smith
Nov 17, 2009·Primary Care·Patricia A Ganz
Mar 10, 2010·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Phyllis ButowMadeleine King
Apr 7, 2010·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Ann H PartridgeHyman Muss
Apr 13, 2010·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·David WiljerPamela Catton
Jun 29, 2010·The Lancet Oncology·Helena J KondrynTim O B Eden
Mar 26, 2013·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Sarah A BirkenBryan J Weiner
Oct 29, 2013·Oncology Nursing Forum·Dorothy DulkoBerta M Geller
Mar 26, 2015·Journal of Oncology Practice·SarahMaria DonohueAmye J Tevaarwerk
Feb 28, 2016·Journal of Cancer Survivorship : Research and Practice·Marie BarnettJennifer S Ford
Jul 9, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·L Aubree ShaySally W Vernon
Sep 7, 2017·Journal of the National Comprehensive Cancer Network : JNCCN·Crystal S DenlingerNicole R McMillian
Jan 19, 2018·Journal of Adolescent and Young Adult Oncology·Joemy M RamsayAnne C Kirchhoff
May 19, 2018·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Paul B JacobsenJulia H Rowland

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Citations

Dec 19, 2018·Journal of Cancer Survivorship : Research and Practice·Ashley DalyAnn C Mertens
Mar 1, 2019·Pediatric Blood & Cancer·Miranda M FidlerPaul C Nathan
Jan 6, 2019·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Alexandra HuaAmye J Tevaarwerk
Jan 11, 2020·ANS. Advances in Nursing Science·Eunji Cho, Sharron L Docherty
Jan 12, 2020·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Marquita W Lewis-ThamesYamilé Molina
Jun 10, 2020·Journal of Cancer Survivorship : Research and Practice·Marquita W Lewis-ThamesTimiya S Nolan
Jan 21, 2022·Journal of Adolescent and Young Adult Oncology·Caroline S DorfmanKevin C Oeffinger

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