A stronger voice

International Journal of Health Care Quality Assurance
Sherrie Hitchen, Graham R Williamson

Abstract

The purpose of this paper is to discuss learning about service-user and carer involvement from an action research (AR) study into self-directed support implementation in one English mental health trust. The paper promotes appointing and supporting carers and people with experience as co-researchers to obtain authentic local perspectives when undertaking service implementation or redesign. The researchers used an AR spiral method incorporating carers and people with mental health experience as co-researchers. The co-researchers worked alongside the lead researcher gathering data from focus groups, training sessions and other meetings over four years and attending collaborative steering group meetings alongside professional workers throughout the study. The authors suggest that participation gave co-researchers a powerful and effective voice in this service redesign. This approach revealed more authentic research data and required professionals to be more accountable for their perceptions and to make explicit their understandings throughout the study, which enabled more effective working. Steering group participation was central to securing this participation. The paper illustrates how carer and service-user co-researchers can be...Continue Reading

References

Jan 5, 2002·The British Journal of Psychiatry : the Journal of Mental Science·Alison Faulkner, Phil Thomas
Jul 18, 2002·Health & Social Care in the Community·Carole Truman, Pamela Raine
Jun 5, 2004·International Journal of Technology Assessment in Health Care·Adam OliverRay Robinson
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Citations

Jun 16, 2019·BMC Health Services Research·Aukelien ScheffelaarSandra van Dulmen
Jun 11, 2020·Research Involvement and Engagement·Aukelien ScheffelaarKatrien Luijkx

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