A substantive theory of Keeping the Spirit Alive: the Spirit Within children with cancer and their families

Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses
Roberta Lynn Woodgate, Lesley Faith Degner

Abstract

Despite increasing survivorship, childhood cancer is nonetheless still a very traumatic phenomenon. Children and families must confront many new stressors and challenges. Understanding what families experience is essential if pediatric oncology nurses hope to provide sensitive and comprehensive care. To help discover meaningful descriptions and interpretations of families' experiences with childhood cancer, process-oriented qualitative research needs to be undertaken. A longitudinal qualitative study guided by the philosophy of interpretive interactionism was conducted to arrive at an understanding of childhood cancer from the children's and families' perspectives. A theoretical purposive sample of 39 families residing in western Canada participated. Children (4(1/2)-to-18 years of age) with a variety of cancer diagnoses and their families (parents and siblings) participated. Data collection methods included formal and informal interviewing and participant observation. Data were analyzed by the constant comparative method of grounded theory and analysis of illness narratives. Although the original intent of this study was to focus on the children's cancer symptoms, the children and families could not easily separate their cance...Continue Reading

References

Jan 1, 1991·Cancer Investigation·K SmithL Lesko
Oct 1, 1990·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·M Rechner
Nov 1, 1990·Seminars in Oncology Nursing·P S Hinds
Nov 1, 1988·Nursing Research·P S Hinds, J Martin
May 1, 1985·Journal of Advanced Nursing·M E Duffy
Sep 1, 1984·Journal of Pediatric Psychology·G R MorrowA C Hoagland
Jul 1, 1995·Holistic Nursing Practice·K Ross-AlaolmolkiS Marszal
Apr 1, 1995·Research in Nursing & Health·M Sandelowski
Jan 1, 1994·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·K SchmidtK Weiler
Oct 1, 1993·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·P S Wright
Jul 1, 1993·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·M E ThomaV Kemp
Jun 1, 1996·International Journal of Nursing Studies·R Woodgate, L J Kristjanson
Feb 1, 1996·Cancer Nursing·B NovakovicM A Tucker
Jan 1, 1997·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·K EnskärA Kreuger
Oct 23, 1997·Journal of Pediatric Nursing·L Clarke-Steffen
Feb 16, 1999·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·J Tarr, R H Pickler
May 25, 2001·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·J S Murray

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Citations

Jun 23, 2012·BMC Pediatrics·Ingrid Bergh, Maria Björk
Mar 16, 2006·Issues in Comprehensive Pediatric Nursing·Margaret A Schneider, Roger C Mannell
Jun 7, 2011·International Journal of Nursing Studies·Jayne PriceJackie Parkes
May 9, 2009·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Louise SoanesFaith Gibson
Aug 13, 2008·Journal of Pain and Symptom Management·Cornelia M RulandBente Schjødt-Osmo
Sep 29, 2009·Journal of Pediatric Nursing·Maria BjörkInger Hallström
Jan 26, 2008·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Pernilla PergertOlle Björk
Dec 5, 2006·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Margaretha NolbrisAnna-Lena Hellström
May 1, 2004·Journal of Advanced Nursing·Roberta Lynn Woodgate, Lesley Faith Degner
Jan 30, 2007·Nursing Forum·Judith Fitzgerald Miller
Jan 31, 2006·European Journal of Cancer Care·R L Woodgate
Apr 21, 2011·Journal of Evaluation in Clinical Practice·Hennie R BoeijeEva Alisic
Jun 21, 2015·Journal of Pediatric Psychology·Marieke Van SchoorsMelissa A Alderfer
Jul 29, 2015·Sociology of Health & Illness·Joanne JordanLindsay Prior
Jul 27, 2015·Seminars in Oncology Nursing·Elizabeth Johnston TaylorJoan Haase
Feb 15, 2005·International Journal of Nursing Studies·Evangelia Patistea
Jul 7, 2014·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Laura DarcySusanne Knutsson
Dec 7, 2011·Journal of Korean Academy of Nursing·Sun Young Son
Jan 5, 2007·Oncology Nursing Forum·Pamela S HindsCeleste R Phillips
Mar 16, 2004·Oncology Nursing Forum·Pamela S Hinds
May 18, 2005·Oncology Nursing Forum·Faith GibsonBeth J Sepion
Jul 28, 2016·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Pernilla PergertTom Andrews
Nov 26, 2010·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Lyndsay Jerusha MacKay, David Gregory
Jan 13, 2015·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Chin-Mi ChenJen-Jiuan Liaw
Feb 16, 2006·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Dianne Fochtman
Dec 18, 2013·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Annelie Johansson SundlerMaria Björk
Mar 22, 2015·Journal of Family Nursing·Christina H WestNancy J Moules
May 26, 2017·Death Studies·Ceilidh Eaton RussellMaru Barrera
Aug 31, 2006·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Emily Hufton
Feb 1, 2015·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Sharon B McNeil
Aug 5, 2005·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Maria BjörkInger Hallström
Feb 5, 2009·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Kristin Stegenga, Peggy Ward-Smith
Jun 26, 2007·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Annaka Gustafson Thibodeaux, Janet A Deatrick
Jun 10, 2011·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Erin Jennifer Watt Shepherd, Roberta Lynn Woodgate
Apr 21, 2006·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Roberta Lynn Woodgate
Jul 4, 2017·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Mary F ConwayJill M Popp
Jul 20, 2010·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Paula C FletcherRebecca J Harry
Jul 20, 2010·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Charlotte Angström-BrännströmVera Dahlqvist

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