A Survey of Patient and Partner Outcome and Treatment Preferences in Mild Cognitive Impairment

Journal of Alzheimer's Disease : JAD
G E SmithDona Ec Locke

Abstract

The patient-centered movement in health care is increasing efforts to design studies and interventions that address the outcomes that matter most to patients and their families. Research has not adequately addressed Alzheimer's disease patient and caregiver preferences. To survey the outcome and treatment preferences of patients and caregivers who had completed a multicomponent behavioral intervention for mild cognitive impairment (MCI). Extending prior work, we conducted an online survey regarding outcome and intervention preferences. Participants were patients with MCI and partners who completed the HABIT Healthy Action to Benefit Independence & Thinking ® program. Both patient and partner respondents ranked patient quality of life as the highest priority, followed by patient self-efficacy, functional status, patient mood, and patient memory performance. Distressing behaviors and caregiver outcomes (burden, mood, and self-efficacy) had low rankings. Regarding the importance of HABIT ® program components, memory compensation training was ranked highest and wellness education lowest by all groups. Additional research should compare patient preference for patient reported outcomes, traditional neuropsychological and clinician ou...Continue Reading

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Citations

Aug 20, 2019·American Journal of Speech-language Pathology·Alyssa Lanzi, Michelle S Bourgeois
Feb 6, 2020·The World Journal of Biological Psychiatry : the Official Journal of the World Federation of Societies of Biological Psychiatry·Siegfried KasperMaría Sagrario Manzano Palomo
May 3, 2019·Neuropsychological Rehabilitation·Lisa A ChudobaMaureen Schmitter-Edgecombe
Aug 25, 2020·International Journal of Geriatric Psychiatry·Andrea M KuraszMelanie Chandler
Oct 15, 2019·The Clinical Neuropsychologist·Priscilla A Amofa SrGlenn Smith
Jul 27, 2021·Journal of the International Neuropsychological Society : JINS·Anne L Shandera-OchsnerGlenn E Smith

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Software Mentioned

HABIT

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