A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder

Journal of Autism and Developmental Disorders
Xuejun KongDavid A Hirsh

Abstract

The prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination between primary care and specialists, and saturation of neuropsychiatry-based centers' capacity to care for the ASD population. ASD treatment also lacks of a coordinated system of care for patients' multi-system comorbidities. Families are calling for an ASD care delivery system to meet their needs and the needs of their children. To serve people with ASD and their medical and other providers, we propose a coordinated approach to care grounded in primary care. We call the model the "Systematic Network of Autism Primary Care Services (SYNAPSE)." We develop the model by applying the frameworks of "coproduction" of care and chronic disease management. In this Commentary we discuss the model's rationale, underpinnings, and the implications for clinical practice. We advance these ideas to align with policy makers' recognition of the importance of primary care for ASD, as reflected by the most r...Continue Reading

References

Feb 24, 2009·Journal of the American Medical Directors Association·Victor HirthMaureen Dever-Bumba
Mar 4, 2009·Pediatrics·Allison GolnikIris Wagman Borowsky
Jul 6, 2010·Inflammatory Bowel Diseases·Wallace CrandallPeter Margolis
Mar 20, 2012·Journal of Autism and Developmental Disorders·Mary Beth BruderNeil Stein
Aug 8, 2012·Clinical Child and Family Psychology Review·Jeffrey S Karst, Amy Vaughan Van Hecke
Aug 1, 2012·Journal of Child and Family Studies·Lauren Brookman-FrazeeRobin Taylor
Mar 4, 2014·Psychiatric Services : a Journal of the American Psychiatric Association·Benjamin ZablotskyElizabeth A Stuart
Mar 13, 2014·BMJ Quality & Safety·Peter J MogayzelLeslie A Hazle
Jun 10, 2014·JAMA Pediatrics·Ariane V S BuescherDavid S Mandell
Jul 16, 2014·Rehabilitation Psychology·Nancy C Cheak-ZamoraPaul A Law
Aug 20, 2014·The Medical Clinics of North America·Christina NicolaidisDora Raymaker
Oct 21, 2014·Journal of Intellectual Disability Research : JIDR·M E WarfieldM Timberlake
Jan 21, 2015·Current Opinion in Psychiatry·Roma A Vasa, Micah O Mazurek
Jul 2, 2015·Psychiatric Services : a Journal of the American Psychiatric Association·Michael FueyoThomas Foley
Sep 18, 2015·BMJ Quality & Safety·Maren BataldenHans Hartung
Jan 5, 2016·Journal of Pediatric Nursing·Sarah Russell, Cynthia Ricci McCloskey
Jan 13, 2016·Annals of Family Medicine·Winston R LiawAndrew W Bazemore
Feb 10, 2016·The Journal of Pediatrics·Alan E Simon, Lara J Akinbami
Apr 3, 2016·The European Respiratory Journal·Sinthia Z Bosnic-Anticevich
May 14, 2016·Clinical Pediatrics·Micah O MazurekKristin Sohl
Jun 9, 2016·Journal of General Internal Medicine·Christina NicolaidisAmelia Baggs
Jul 28, 2016·Neuropsychiatric Disease and Treatment·Clodagh M MurphyGrainne M McAlonan
Sep 25, 2016·Autism : the International Journal of Research and Practice·Dora M RaymakerChristina Nicolaidis
Dec 31, 2016·Child and Adolescent Psychiatry and Mental Health·Megan HatfieldMarina Ciccarelli
Jun 10, 2017·Pediatric Annals·Fred R VolkmarLogan Hart
Nov 14, 2017·International Journal of Medical Education·Neelkamal SoaresDilip Patel
Apr 4, 2018·Pediatrics·Jessica E RastAlice Kuo
Apr 28, 2018·MMWR. Surveillance Summaries : Morbidity and Mortality Weekly Report. Surveillance Summaries·Jon BaioNicole F Dowling
Jul 26, 2018·Journal of Autism and Developmental Disorders·Micah O MazurekKristin Sohl

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Citations

Jun 21, 2020·Journal of Primary Care & Community Health·Christine A LimbersL Adelyn Cohen
Jul 3, 2021·Journal of Oral Microbiology·Ahmed AbdulhaqNezar Noor Al-Hebshi

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