A systematic review of generic multidimensional patient-reported outcome measures for children, part II: evaluation of psychometric performance of English-language versions in a general population

Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research
Astrid JanssensChristopher Morris

Abstract

The objectives of this systematic review were 1) to identify studies that assess the psychometric performance of the English-language version of 35 generic multidimensional patient-reported outcome measures (PROMs) for children and young people in general populations and evaluate their quality and 2) to summarize the psychometric properties of each PROM. MEDLINE, EMBASE, and PsycINFO were searched. The methodological quality of the articles was assessed using the COnsensus-based Standards for selection of health Measurement INstruments checklist. For each PROM, extracted evidence of content validity, construct validity, internal consistency, test-retest reliability, proxy reliability, responsiveness, and precision was judged against standardized reference criteria. We found no evidence for 14 PROMs. For the remaining 21 PROMs, 90 studies were identified. The methodological quality of most studies was fair. Quality was generally rated higher in more recent studies. Not reporting how missing data were handled was the most common reason for downgrading the quality. None of the 21 PROMs has had all psychometric properties evaluated; data on construct validity and internal consistency were most frequently reported. Overall, consiste...Continue Reading

References

Jan 1, 1990·Health Education Quarterly·N S Maylath
Dec 1, 1994·Arthritis and Rheumatism·G SinghD P Goldsmith
Aug 1, 1994·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·P S KurtinL Abetz
Feb 1, 1993·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·B Lindström, B Eriksson
Nov 1, 1996·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·D RaphaelE Donato
Dec 1, 1996·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·M ApajasaloH Sintonen
Apr 1, 1996·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·M ApajasaloJ Rautonen
Aug 6, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·U Ravens-Sieberer, M Bullinger
Aug 6, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·J M LandgrafJ E Ware
Aug 6, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·T VogelsJ M Wit
Aug 26, 1998·Medical Care·A W RileyM Ensminger
Mar 21, 2000·The Journal of Asthma : Official Journal of the Association for the Care of Asthma·E M le CoqJ T van Eijk
May 10, 2000·Psychiatry and Clinical Neurosciences·X WangN Shinfuku
Jul 27, 2001·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·E B WatersK D Hesketh
Sep 4, 2001·Journal of Developmental and Behavioral Pediatrics : JDBP·C Eiser, R Morse
Jun 18, 2002·Child: Care, Health and Development·L J SchmidtR Fitzpatrick
Jan 15, 2004·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Louis S MatzaNancy Kline Leidy
Feb 1, 2005·Psychiatry and Clinical Neurosciences·Jong-Ling FuhKai-Dih Juang
Mar 26, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·S SaigalR Hagan
Apr 5, 2005·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Diane WildUNKNOWN ISPOR Task Force for Translation and Cultural Adaptation
Jul 27, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·H L WeeS C Li
Sep 20, 2006·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Stéphane RobitailUNKNOWN European Kidscreen Group
Aug 2, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ulrike Ravens-SiebererUNKNOWN European KIDSCREEN Group
Jan 9, 2008·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Maite SolansLuis Rajmil
Jan 9, 2008·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Ulrike Ravens-SiebererUNKNOWN KIDSCREEN Group
Jun 11, 2009·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·I-Chan HuangElizabeth A Shenkman
Aug 5, 2009·International Journal of Public Health·Michael ErhartUNKNOWN HBSC Positive Health Focus Group
Aug 21, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Katherine Stevens
Jun 1, 2005·Expert Review of Pharmacoeconomics & Outcomes Research·Ulrike Ravens-SiebererEuropean Kidscreen Group
Feb 20, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Lidwine B MokkinkHenrica C W de Vet
Apr 21, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Nora WilleUlrike Ravens-Sieberer
Jun 22, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Katherine B BevansChristopher B Forrest
Jul 30, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ulrike Ravens-SiebererUNKNOWN European KIDSCREEN Group
Aug 24, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·James W VarniEstella M Alonso
Sep 10, 2010·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Marj MoodieKompal Sinha
Jul 7, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Caroline B TerweeHenrica C W de Vet
Feb 3, 2012·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Katherine B BevansChristopher B Forrest

❮ Previous
Next ❯

Citations

Jan 17, 2016·Developmental Medicine and Child Neurology·Virginia Knox
Mar 17, 2015·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Astrid JanssensChristopher Morris
May 28, 2016·BMC Medical Research Methodology·N Maritza DowlingChenxi Li
Oct 7, 2016·Journal of Child Psychology and Psychiatry, and Allied Disciplines·Ulf JonssonSven Bölte
Sep 8, 2016·Journal of Pediatric Orthopedics·Lisa PhillipsKishore Mulpuri
Jun 19, 2021·Therapeutic Innovation & Regulatory Science·Tasneem ArsiwalaFrancesco Patalano

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.