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A telehealth approach to improving clinical trial access for infants with tuberous sclerosis complex

Journal of Neurodevelopmental Disorders

Jan 24, 2020

Carly HydeShafali S. Jeste

Abstract

Research in rare genetic syndromes associated with ASD is often hampered by the wide geographic distribution of families and the presence of medical comorbidities, such as epilepsy, that may preclude travel to clinical sites. These challenges can limit the sample size and generalizabili...read more

Mentioned in this Paper

Telehealth
Autism Spectrum Disorders
Caregiver
Adaptation
Site
Video Media
Location - Remote
Enrollment
Study Site
Genetic Syndrome
2
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© 2020 Meta ULC. All rights reserved

A telehealth approach to improving clinical trial access for infants with tuberous sclerosis complex

Journal of Neurodevelopmental Disorders

Jan 24, 2020

Carly HydeShafali S. Jeste

PMID: 31969108

DOI: 10.1186/s11689-019-9302-0

Abstract

Research in rare genetic syndromes associated with ASD is often hampered by the wide geographic distribution of families and the presence of medical comorbidities, such as epilepsy, that may preclude travel to clinical sites. These challenges can limit the sample size and generalizabili...read more

Mentioned in this Paper

Telehealth
Autism Spectrum Disorders
Caregiver
Adaptation
Site
Video Media
Location - Remote
Enrollment
Study Site
Genetic Syndrome
2

Similar Papers Found In These Feeds

Drug Delivery & Bio-Conjugation

This feed describes how bioconjugation, a covalent linking between the drug molecule and a biomolecule, can alter (facilitate or impede) drug delivery in living organisms. Discover the latest research on bioconjugation in drug delivery here

Neurodevelopmental disorder

Neurodevelopmental disorders such as attention deficit hyperactivity disorder (adhd) and autism spectrum disorder, although most commonly considered in childhood, can be lifelong conditions. Here is the latest research.

Related Papers

Paper Details
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