A valid instrument for measuring informal care time for people with dementia

International Journal of Geriatric Psychiatry
Simone NeubauerElmar Grässel

Abstract

An economic evaluation of dementia-related interventions from a societal perspective should take account of informal caregiving. We assessed informal caregiving time and report our findings on the validity and stability of our results. Within the German IDA study ('Dementia Care Initiative in Primary Practice'), informal care time for people with dementia living at home is assessed. We applied a German adaptation of the Resource Utilization in Dementia (RUD) questions on informal care, which distinguishes three categories of informal care activities: Activities of Daily Living (ADL), Instrumental ADL (IADL), and supervision. In contrast to the original version, we included the time of all informal caregivers who are involved in caring for the patient. The questionnaire was completed as a computer-assisted telephone interview at baseline and after 1 year. To test the plausibility of the questionnaire, we proposed seven hypotheses about the reported informal care time. Nearly all results confirmed our hypotheses. Informal care time as well as changes over time correlated with the physical and mental health status of the patient. Considering the time of other informal caregivers led to slightly higher correlations (not significant...Continue Reading

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Citations

Jul 23, 2013·PloS One·Hanna LeichtUNKNOWN AgeCoDe study group
Dec 11, 2013·Journal of the American Medical Directors Association·Hans-Helmut KönigUNKNOWN AgeCoDe Study Group
Nov 13, 2012·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Anders WimoBrenda Gannon
Aug 16, 2011·Acta Psychiatrica Scandinavica·H LeichtUNKNOWN AgeCoDe study group
Oct 27, 2015·Social Psychiatry and Psychiatric Epidemiology·André HajekHans-Helmut König
May 16, 2012·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Thomas RappBruno Vellas
Sep 15, 2011·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Larissa SchwarzkopfElmar Graessel
Apr 18, 2015·BMC Health Services Research·Christian BrettschneiderHans-Helmut König
Sep 25, 2012·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Petra MennElmar Gräßel
Jun 13, 2018·International Journal of Geriatric Psychiatry·Takayo NakabeYuichi Imanaka
Jul 30, 2021·PharmacoEconomics·Sean UrwinMatt Sutton

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