Access to hospice for African Americans: are they informed about the option of hospice?

Journal of Palliative Medicine
Ramona L RhodesLisa C Welch

Abstract

To examine whether African Americans are informed about hospice services, and to examine demographic or disease factors that may influence receipt of information about hospice. Retrospective cohort study. Twenty-two states that accounted for nearly 70% of deaths in the United States in 2000. A mortality follow-back survey was conducted. Based on sampled death certificates from 22 states, informants listed on the death certificates were contacted by telephone regarding the decedent's dying experience. Among those persons not receiving hospice services, the respondents were asked if hospice was presented as an option for care at the end of life. Of 1578 interviews, 111 decedents were non-Hispanic, African Americans (average age, 71.5 years; 56% female). Of those, 32 (30.3%) of the decedents received hospice services, while 77 (68.5%) did not. Slightly more than half of African Americans (60; 53.8%) were not informed about hospice services and 12 (8.9%) were informed but did not enroll. Cancer sufferers were more likely to be counseled about hospice (p = 0.001). Slightly more than half of African Americans were not informed about hospice services, and of those who were informed, cancer was the leading cause of death. Information a...Continue Reading

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Citations

Mar 10, 2010·Archives of Internal Medicine·Jane L GivensArlene S Ash
Mar 28, 2008·Journal of Palliative Medicine·Melissa D A CarlsonElizabeth H Bradley
Oct 8, 2009·Journal of Palliative Medicine·Kimberly S JohnsonJames A Tulsky
Jan 27, 2011·Journal of Palliative Medicine·Susan EnguidanosGeorge Taylor
Jun 27, 2012·Journal of Palliative Medicine·Claire SelskyUNKNOWN Latin American Cancer Research Coalition
Oct 1, 2013·Journal of Palliative Medicine·Kimberly S Johnson
Feb 21, 2009·The American Journal of Hospice & Palliative Care·Kyusuk ChungLinda Samson
Mar 20, 2014·Journal of Community Health·Preethy NayarMonirul Islam
Feb 4, 2016·Journal of Palliative Medicine·Nathan A BoucherKimberly S Johnson
Jan 18, 2011·Journal of Pain and Symptom Management·Todd M JenkinsH Michael Maetz
Sep 20, 2015·Journal of Pain and Symptom Management·Ramona L RhodesEthan A Halm
Sep 24, 2008·Journal of Pain and Symptom Management·David C CurrowAmy P Abernethy
Mar 22, 2012·Cancer·Judith S KaurCatherine Witte
May 4, 2013·Health & Social Care in the Community·Rosemary FreyZonghua Wang
May 8, 2014·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Shinobu Watanabe-GallowayFang Qiu
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Feb 18, 2016·The American Journal of Hospice & Palliative Care·Ramona L RhodesCelette S Skinner
Jul 11, 2013·The American Journal of Hospice & Palliative Care·Dona J ReeseDeborah O Erwin
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Feb 9, 2021·Journal of Pain and Symptom Management·David Boyce-FappianoB Ashleigh Guadagnolo
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Jul 18, 2021·Journal of Pain and Symptom Management·Vasilii BushunowYael Schenker
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