Actions and processes that patients, family members, and physicians associate with patient- and family-centered care

BMC Family Practice
Clarissa HsuRobert J Reid

Abstract

Patient- and family-centered care (PFCC) is increasingly linked to improved communication, care quality, and patient decision making. However, in order to consistently implement and study PFCC, health care systems and researchers need a solid evidentiary base. Most current definitions and models of PFCC are broad and conceptual, and difficult to translate into measurable behaviors and actions. This paper provides a brief overview of all actions that focus group respondents associated with PFCC in ambulatory (outpatient) care settings and then explores actions associated with the concept of "dignity and respect" in greater detail. We conducted nine focus groups with patients, family members, and physicians in three metropolitan regions across the United States. Group discussions were transcribed and analyzed using a thematic analysis approach. We identified 14 domains and 47 specific actions that patients, family members, and physicians associate with PFCC. In addition to providing a detailed matrix of these domains and actions, this paper details the actions associated with the "dignity and respect" concept. Key domains identified under "dignity and respect" include: 1) building relationships, 2) providing individualized care, ...Continue Reading

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Citations

Apr 14, 2020·Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association·Joy V GoldsmithTerri Ann Parnell
Mar 15, 2020·BMC Health Services Research·Tali FillerAnna R Gagliardi
Nov 27, 2020·Palliative & Supportive Care·Elaine WittenbergJoy V Goldsmith
Dec 20, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kerry KuluskiG Ross Baker
Feb 12, 2021·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Nicole L ArgallSophie A Lefmann
Jan 19, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kerry Kuluski
Aug 4, 2020·Journal of Pediatric Nursing·Lei ChengPamela S Hinds
Jan 30, 2020·Mayo Clinic Proceedings. Innovations, Quality & Outcomes·Lindsey M PhilpotJon O Ebbert

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