Activity and meaning making in the everyday lives of people with advanced cancer

Palliative & Supportive Care
Karen la CourStaffan Josephsson

Abstract

This study aims to explore and understand how people with advanced cancer create meaning and handle everyday life through activity. A purposive sample of seven participants was recruited from a larger study. Data were collected through qualitative interviews and participant observations conducted in the participants' home environments while they were engaged in activities to which they assigned particular value. Interpretive analysis was conducted using narrative theory and relevant literature. The study shows how people in conditions of advanced cancer fashion narratives useful for handling everyday life with advanced cancer. A meta-narrative of "saying goodbye in a good way" provided an overall structure for the participants as they attempted to create desired narratives negotiated in context of the individuals' sociocultural life and in the proximity of death. A narrative of "being healthy although ill" provided an arena for exploring the contrast between simultaneously feeling well and severely ill. Further emplotment of activities in "routines and continuity" was identified as a means to provide a safe, familiar framework stimulating participants' everyday agency. "My little Mecca" was identified as a narrative reflecting ...Continue Reading

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Citations

Jan 13, 2015·Scandinavian Journal of Occupational Therapy·Line Lindahl-JacobsenJens Søndergaard
Jan 23, 2016·Palliative & Supportive Care·Lina ErikssonMargareta Lindberg
Mar 11, 2015·Scandinavian Journal of Caring Sciences·Bente Lisbet RoaldsenGeir F Lorem
Sep 4, 2012·Journal of Aging Studies·Anneli NymanGunilla Isaksson
Nov 11, 2015·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Lene Østergaard JepsenLone Smidstrup Friis
Sep 1, 2016·Scandinavian Journal of Occupational Therapy·Hanne PeoplesKaren la Cour
Jan 6, 2017·Scandinavian Journal of Occupational Therapy·Eva-Britt NorbergMargareta Brännström
Jun 1, 2017·Scandinavian Journal of Occupational Therapy·Klara JakobsenRandi J Reidunsdatter
Jul 18, 2015·BMJ Supportive & Palliative Care·Deidre D MorganSanchia A Aranda
May 16, 2018·The Canadian Journal of Nursing Research = Revue Canadienne De Recherche En Sciences Infirmières·Michelle Wyndham-WestAimee Santoro
Sep 21, 2017·OTJR : Occupation, Participation and Health·Kathleen Doyle LyonsMark T Hegel
Jun 30, 2011·The American Journal of Hospice & Palliative Care·Karen la Cour, Helle Ploug Hansen
Jan 16, 2016·Australian Occupational Therapy Journal
Nov 21, 2019·International Journal of Qualitative Studies on Health and Well-being·Suvi Holmberg
Nov 23, 2019·Palliative Medicine·Sonya S LoweSarah G Brearley
Sep 25, 2017·Scandinavian Journal of Occupational Therapy·Helen von Post, Petra Wagman
Jan 23, 2019·Australian Occupational Therapy Journal·Kathrine HammillCatherine Cook
Apr 14, 2012·Current Opinion in Supportive and Palliative Care·Deidre D Morgan, Kahren M White
Jun 23, 2021·BMJ Case Reports·Takayoshi YamagaKosuke Nakanishi

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