Acute Care Utilization at End of Life in Sickle Cell Disease: Highlighting the Need for a Palliative Approach.

Journal of Palliative Medicine
Emily E JohnstonSmita Bhatia

Abstract

Background: People with sickle cell disease (SCD) have a life expectancy of <50 years, so understanding their end-of-life care is critical. Objective: We aimed to determine where individuals with SCD were dying and their patterns of care in the year preceding death to highlight end-of-life research priorities and possible opportunities for intervention. Design: Using the California SCD Data Collection Program database (containing administrative data, vital records, and Medicaid claims), we examined people with SCD who died between 2006 and 2015 (cases) at age <80 years and examined their hospital and emergency department (ED) utilization in their last year of life. Comparators included living controls with SCD matched 1:1 based on age, analysis year, insurance, and income. Results: We identified 486 people with SCD (cases) who died at a median age of 45 years (SD: 16 years). Most died in the hospital (63%) and ED (15%). In their last year of life, people with SCD were hospitalized for an average of 42 days (SD: 49 days) over five admissions. Inpatient admissions and ED visits were stable throughout the year until the month before death when acute care utilization sharply increased. In their last year of life, cases had more hos...Continue Reading

References

Jun 9, 1994·The New England Journal of Medicine·O S PlattP P Klug
Dec 16, 1995·BMJ : British Medical Journal·A LeeG Serjeant
Oct 9, 2003·British Journal of Haematology·Elizabeth A ManciUNKNOWN Investigators of the Cooperative Study of Sickle Cell Disease
Feb 7, 2004·Blood·Charles T QuinnGeorge R Buchanan
Nov 30, 2005·American Journal of Hematology·Sadhna M ShankarMarie R Griffin
Mar 3, 2007·Pediatrics·Brenda C McClain, Zeev N Kain
Apr 10, 2009·American Journal of Hematology·Teresa L KaufAbraham G Hartzema
Feb 20, 2010·The American Journal of Hospice & Palliative Care·Musharraf Navaid, Terry Melvin
Mar 3, 2010·Blood·Charles T QuinnGeorge R Buchanan
Apr 2, 2010·American Journal of Preventive Medicine·Scott D GrosseSuzette O Oyeku
Apr 8, 2010·JAMA : the Journal of the American Medical Association·David C BrousseauClaudia A Steiner
Sep 2, 2010·The Nursing Clinics of North America·Diana J WilkieRobert E Molokie
Mar 2, 2011·Pediatric Blood & Cancer·Julie A WolfsonMichele D Kipke
May 11, 2011·Pediatrics·Chris FeudtnerJoanne Wolfe
Dec 20, 2011·Pediatric Blood & Cancer·J A PanepintoD C Brousseau
Jan 10, 2012·Pediatric Blood & Cancer·Jean L RaphaelSuzette O Oyeku
Feb 9, 2012·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Thomas J SmithJamie H Von Roenn
May 3, 2013·Pediatric Blood & Cancer·Dima Hamideh, Ofelia Alvarez
Sep 17, 2013·Pediatric Blood & Cancer·Susan ClasterEllen Iverson
Apr 26, 2015·The Journal of Emergency Medicine·Morey A BlinderFrancis Vekeman
Feb 4, 2016·Journal of Palliative Medicine·Toluwalase A AjayiRabia A Atayee
Mar 10, 2016·Public Health Reports·Susan T PaulukonisMary M Hulihan
May 7, 2016·Pain Medicine : the Official Journal of the American Academy of Pain Medicine·Nadia S Ruta, Samir K Ballas
Dec 8, 2016·Journal of Palliative Medicine·May HuaHannah Wunsch
Dec 22, 2016·Pediatric Blood & Cancer·Susan T PaulukonisMary M Hulihan
Jan 10, 2017·The Journal of Pain : Official Journal of the American Pain Society·Carlton DampierWilliam Zempsky
Nov 1, 2013·Pediatrics·UNKNOWN SECTION ON HOSPICE AND PALLIATIVE MEDICINE AND COMMITTEE ON HOSPITAL CARE
Aug 13, 2017·Pediatric Blood & Cancer·Laura M Bou-MarounGregory A Yanik

❮ Previous
Next ❯

Citations

Feb 7, 2020·Blood Advances·Mandip KaurKim Smith-Whitley
Jul 20, 2021·Health Science Reports·Trisha E WongSusan Paulukonis

❮ Previous
Next ❯

Software Mentioned

SCDC

Related Concepts

Related Feeds

Blood And Marrow Transplantation

The use of hematopoietic stem cell transplantation or blood and marrow transplantation (bmt) is on the increase worldwide. BMT is used to replace damaged or destroyed bone marrow with healthy bone marrow stem cells. Here is the latest research on bone and marrow transplantation.

Anemia

Anemia develops when your blood lacks enough healthy red blood cells. Anemia of inflammation (AI, also called anemia of chronic disease) is a common, typically normocytic, normochromic anemia that is caused by an underlying inflammatory disease. Here is the latest research on anemia.