Adapting quality of life instruments

Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research
Angelo Swaine-VerdierS McKenna

Abstract

Due to the international nature of many clinical studies and trials it is often necessary to produce several language versions of specific measures. While it is generally acknowledged that it is necessary to produce versions that are conceptually equivalent, the best method of achieving this is more controversial. It is commonly stated that there is a gold-standard method, which involves forward and backward translation. However, no evidence has been presented to support this view. This paper argues that the "gold-standard" method is difficult to support and describes an alternative method involving dual translation panels that has been used in the production of all adaptations of needs-based quality of life instruments.

References

Dec 1, 1993·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·M BullingerN Aaronson
Nov 17, 1998·Journal of Clinical Epidemiology·S FukuharaK Kurokawa
Mar 14, 2001·Journal of Affective Disorders·S P McKennaD Whalley
Dec 4, 2003·Parkinsonism & Related Disorders·Peter Hagell, Stephen P McKenna
Sep 16, 2004·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Alan TennantPeter Hagell

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Citations

May 25, 2006·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Haritomeni PiperidouKarlovasitou Anna
Oct 24, 2012·Epidemiology and Psychiatric Sciences·A BarbatoM Vallarino
Aug 22, 2009·Nicotine & Tobacco Research : Official Journal of the Society for Research on Nicotine and Tobacco·Jennifer Irvin VidrineDavid W Wetter
Nov 5, 2013·International Journal of Nursing Studies·Randi Dovland AndersenBruce Ambuel
Nov 19, 2013·Dermatologic Surgery : Official Publication for American Society for Dermatologic Surgery [et Al.]·Gabrielle Randskov VindingGregor B E Jemec
Feb 3, 2012·The Journal of Nervous and Mental Disease·Pedro V S MagalhãesFlávio Kapczinski
Jan 16, 2009·Scandinavian Journal of Occupational Therapy·Tina HansenTon Satink
Nov 27, 2008·Scandinavian Journal of Primary Health Care·John Brodersen, Hanne Thorsen
Oct 30, 2009·Pain Medicine : the Official Journal of the American Academy of Pain Medicine·Marianna PapaioannouAndroniki Palgimesi
Apr 1, 2005·Expert Review of Pharmacoeconomics & Outcomes Research·Peter Hagell
Nov 20, 2012·The Knee·Jonathan D CominsJohn Brodersen
Sep 18, 2012·Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen·Jan-Philipp BreuerClaudia Spies
Jun 29, 2010·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Karien A M van den BerghHarry J de Koning
Jan 18, 2006·Headache·Michele Peters, Jan Passchier
Jan 31, 2013·Journal of Thrombosis and Haemostasis : JTH·A K BruceP Monagle
May 21, 2013·Scandinavian Journal of Medicine & Science in Sports·J D CominsJ Brodersen
Apr 20, 2013·Journal of Plastic Surgery and Hand Surgery·Jesper O SchønnemannKjeld Søballe
Feb 19, 2013·Contemporary Clinical Trials·Ari GnanasakthyCaroline Boulton
Nov 11, 2009·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Alice Aita CacilhasFlávio Kapczinski
Apr 5, 2005·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Stephen P McKenna, Lynda C Doward
Jun 19, 2013·Epilepsy & Behavior : E&B·Koraliya S TodorovaStefan T Tsekov
Jul 30, 2010·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Stephen P McKennaBenjamin J Eckert
Jan 9, 2008·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Catherine AcquadroUNKNOWN European Regulatory Issues and Quality of Life Assessment (ERIQA) Group
Mar 17, 2010·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Lynda C DowardStephen P McKenna
Jan 15, 2010·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Peter HagellStephen P McKenna
Jan 28, 2010·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Hélène GiletMaria Koltowska-Häggström
Jan 31, 2007·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Maria Kołtowska-HäggströmKerstin Bingefors
Feb 24, 2015·Journal of Clinical Epidemiology·Jonathan EpsteinFrancis Guillemin
Sep 19, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Matylda SierakowskaMwidimi Ndosi
Oct 13, 2005·Health and Quality of Life Outcomes·Luis PrietoKristian Juul
Apr 16, 2013·Pain·Elisabeth Fournier-CharrièreBruno Falissard

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