Adolescent views on transition in diabetes and nephrology.

European Journal of Pediatrics
Allison TongJonathan C Craig

Abstract

Managing the transition of adolescents from paediatric to adult care is complex and remains an important challenge. This aim of this study was to synthesize studies on perspective on transition to adult care among young people with diabetes or chronic kidney disease. We conducted a systematic review of surveys and qualitative studies that explored adolescent perspectives on transition to adult care in diabetes and chronic kidney disease. Searches were conducted to week 4, June 2010. For quantitative questionnaires, all items were mapped into a domain schema. Thematic synthesis of the qualitative findings was performed. Fourteen studies involving 854 respondents were included. The majority of participants felt somewhat prepared but had reservations about transfer. Five major themes were identified: (1) preparedness (timing of transfer, access to providers, parental involvement), (2) overwhelmed by an impersonal environment in adult service (sterile and unwelcoming, navigating new processes, feeling displaced), (3) independence (developing self-esteem and an adult identity, taking responsibility and ownership), (4) valuing familiarity (building trust, peer support) and (5) service and information needs (leniency, lack of access, ...Continue Reading

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Citations

Nov 6, 2013·Journal of Pediatric Nursing·Jerlym S PorterJane S Hankins
Jun 15, 2018·Journal of Renal Care·Jeanette FinderupBente Jespersen
Apr 3, 2020·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·S L TraceF E Lithander
Jul 15, 2017·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Anna FrancisGermaine Wong
Mar 8, 2019·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Kimberley CrawfordAllison Williams
Jun 27, 2013·The Journal of Pediatrics·Allison TongJonathan C Craig

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