Adolescents, graduated autonomy, and genetic testing.

Genetics Research International
Susan Fox

Abstract

Autonomy takes many shapes. The concept of "graduated autonomy" is conceived as comprising several unique features: (1) it is incremental, (2) it is proportional, and (3) it is related to the telos of the life stage during which it occurs. This paper focuses on graduated autonomy in the context of genetic testing during adolescence. Questions can be raised about other life stages as well, and some of these questions will be addressed by discussing a possible fourth characteristic of graduated autonomy, that is, its elasticity. Further scholarship and analysis is needed to refine the concept of graduated autonomy and examine its applications."There is no steady. . . progress in this life; we do not advance through fixed gradations, and at the last one pause through infancy's unconscious spell, boyhood's thoughtless faith, adolescence' doubt (the common doom), then skepticism, then disbelief, resting at last in manhood's pondering repose of If. But once gone through, we trace the round again; and are infants, boys, and men, and Ifs eternally. Where lies the final harbor, whence we unmoor no more?"Herman Melville.

References

Sep 21, 1994·JAMA : the Journal of the American Medical Association·D C WertzP R Reilly
Jul 11, 2006·The Journal of Pediatrics·Victoria A Miller, Robert M Nelson
Mar 12, 2009·European Journal of Human Genetics : EJHG·Pascal BorryUNKNOWN Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG)
May 19, 2009·American Journal of Medical Genetics. Part a·Ramsey M WehbeAllyn McConkie-Rosell
Jul 22, 2009·Rehabilitation Psychology·Deborah FriedmanKathy Zebracki

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Citations

Oct 28, 2019·Clinical Genetics·Preethi Raghuram PillaiMelanie F Myers

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