Adult long-term health-related quality of life of congenital hydrocephalus patients

Journal of Neurosurgery. Pediatrics
Anja KutscherMatthias Preuss

Abstract

Congenital hydrocephalus has a major impact on the lives of patients and their relatives, as well as their long-term neurological development and social integration. The aim of this study was to assess the self-reported health-related quality of life (HRQOL) of patients after reaching adulthood. A total of 31 patients who required CSF shunt treatment for congenital hydrocephalus within the 1st year of life (between 1963 and 1987) agreed to undergo a structured SF-36 self-assessment. An age-matched German standard cohort was used as control. Additional parameters of surgical, social, and global neurological outcome were analyzed. The mean patient age was 35 years (range 26-51 years, 13 females and 18 males). Hydrocephalus etiologies were posthemorrhagic hydrocephalus (n = 9), postinfectious hydrocephalus (n = 5), aqueductal stenosis (n = 10), myelomeningocele (n = 2), and unknown cause (n = 5). The mean modified Rankin Scale score was 1.6 (range 0-4). Hydrocephalic patients achieved lower scores for the SF-36 items physical functioning (70.5 vs. 93.5, p < 0.05), physical role functioning (74.2 vs. 88.3, p < 0.05), and general health perceptions (64.5 vs. 72.3, p < 0.05). Emotional, social role functioning, and mental health item...Continue Reading

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Citations

Nov 7, 2017·Developmental Medicine and Child Neurology·Megan TownsF Virginia Wright
Sep 7, 2018·Developmental Medicine and Child Neurology·Moran GigiHaim Bassan
Nov 11, 2017·Child's Nervous System : ChNS : Official Journal of the International Society for Pediatric Neurosurgery·Hans Christoph BockHans Christoph Ludwig
Jul 29, 2021·The Journal of Craniofacial Surgery·Kerry-Ann S MitchellChad R Gordon
Jul 17, 2021·Developmental Medicine and Child Neurology·Hannah M TullyMark Wainwright

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