PMID: 11328437May 1, 2001Paper

Adults' recollections of their experiences as young caregivers of family members with chronic physical illnesses

Journal of Advanced Nursing
N R Lackey, M F Gates

Abstract

The aims of this study were to describe the number, kind, and intensity of caregiving activities performed by individuals who assumed caregiving responsibilities, as youngsters, for adults with chronic physical illnesses; to explore the meaning and effects of the caregiving experience on those individuals; and to examine positive and negative effects of caregiving then and now. Family mobility, demographic changes, and health care system changes in the United States of America (USA) have contributed to an increasing number of youngsters under the age of 18 caring for adults with chronic physical illnesses in the home. The effects of such caregiving on youngsters and the long-term effects on them as adults require study. This descriptive, retrospective study had a convenience sample of 51 adults (age range 19--68 years now, 3--19 years then) who cared for their family members diagnosed with cancer, stroke, cardiovascular disease, multiple sclerosis or amyotrophic lateral sclerosis, respiratory disease, diabetes, or arthritis. Demographic data and caregiving data were analysed using descriptive statistics. The semistructured interview data were analysed using content analysis. Of the caregiving care tasks most frequently performe...Continue Reading

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