Advancing interdisciplinary research in head and neck cancer through a multicenter longitudinal prospective cohort study: the NETherlands QUality of life and BIomedical Cohort (NET-QUBIC) data warehouse and biobank

BMC Cancer
Irma M Verdonck-de LeeuwC René Leemans

Abstract

Worldwide, over 500,000 people are diagnosed with head and neck cancer each year, a disease with major impact on life expectancy and quality of life. The purpose of the Netherlands Quality of life and Biomedical Cohort study (NET-QUBIC) is to advance interdisciplinary research that aims to optimize diagnosis, treatment, and supportive care for head and neck cancer patients and their informal caregivers. Using an extensive assessment protocol (electronic clinical record form, patient reported outcome measures and fieldwork (interviews and physical tests)), clinical data and data on quality of life, demographic and personal factors, psychosocial (depression, anxiety, fatigue, pain, sleep, mental adjustment to cancer, posttraumatic stress), physical (speech, swallowing, oral function, malnutrition, physical fitness, neurocognitive function, sexual function), lifestyle (physical activity, nutrition, smoking, alcohol, drugs), and social factors (social function, social support, work, health care use, and costs) are collected and stored in the data warehouse. A longitudinal biobank is built with tumor tissue, blood and blood components, saliva samples, and oral rinses. An infrastructure for fieldwork and laboratory protocols is estab...Continue Reading

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Citations

May 3, 2020·Head & Neck·Victoria W HuangShaun A Nguyen
Apr 8, 2020·Molecular Oncology·Ivan R VogeliusSøren M Bentzen
Jun 23, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Angelina M M SantosoUNKNOWN NET-QUBIC consortium
Jul 12, 2020·Current Oncology Reports·Robert P TakesAlfio Ferlito
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Jun 26, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Jorine A VermaireCaroline M Speksnijder

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Methods Mentioned

BETA
dissection
biopsies
PCR
biopsy

Software Mentioned

QUBIC
Open Clinica
OpenClinica
NET

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