Abstract
Worldwide, over 500,000 people are diagnosed with head and neck cancer each year, a disease with major impact on life expectancy and quality of life. The purpose of the Netherlands Quality of life and Biomedical Cohort study (NET-QUBIC) is to advance interdisciplinary research that aims to optimize diagnosis, treatment, and supportive care for head and neck cancer patients and their informal caregivers. Using an extensive assessment protocol (electronic clinical record form, patient reported outcome measures and fieldwork (interviews and physical tests)), clinical data and data on quality of life, demographic and personal factors, psychosocial (depression, anxiety, fatigue, pain, sleep, mental adjustment to cancer, posttraumatic stress), physical (speech, swallowing, oral function, malnutrition, physical fitness, neurocognitive function, sexual function), lifestyle (physical activity, nutrition, smoking, alcohol, drugs), and social factors (social function, social support, work, health care use, and costs) are collected and stored in the data warehouse. A longitudinal biobank is built with tumor tissue, blood and blood components, saliva samples, and oral rinses. An infrastructure for fieldwork and laboratory protocols is estab...Continue Reading
References
Jun 22, 2000·Head & Neck·A de GraeffJ A Winnubst
Jan 13, 2004·Cancer·Fu-Min FangSheung-Fat Ko
Jan 18, 2006·Archives of Otolaryngology--head & Neck Surgery·Hisham M Mehanna, Randall P Morton
Feb 6, 2007·The Laryngoscope·Irma M Verdonck-de LeeuwC Rene Leemans
Mar 3, 2007·Psychosomatics·Sonia A DuffyJeffrey E Terrell
Mar 22, 2008·International Journal of Radiation Oncology, Biology, Physics·Fu-Min FangHsuan-Ying Huang
May 30, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Carrie A Karvonen-GutierrezSonia A Duffy
Jun 7, 2008·Cancer·Sonia A DuffyTheodoros N Teknos
Aug 2, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Johannes A LangendijkBen J Slotman
May 20, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·François MeyerIsabelle Bairati
Dec 17, 2009·Oral Oncology·Irma M Verdonck-de LeeuwRemco de Bree
Mar 2, 2010·Radiotherapy and Oncology : Journal of the European Society for Therapeutic Radiology and Oncology·Inge M OskamC René Leemans
May 24, 2011·Head & Neck·Jill GilbertBarbara A Murphy
May 27, 2011·Oral Oncology·Kristine BjørndalChristian Godballe
Jun 1, 2011·Clinical Otolaryngology : Official Journal of ENT-UK ; Official Journal of Netherlands Society for Oto-Rhino-Laryngology & Cervico-Facial Surgery·A A OsthusH J Aarstad
Aug 23, 2011·Oral Oncology·Arild Andrè OsthusHans J Aarstad
Jan 26, 2012·Otolaryngology--head and Neck Surgery : Official Journal of American Academy of Otolaryngology-Head and Neck Surgery·Arun SharmaChu Chen
Mar 15, 2012·Oral Oncology·Susan UrbaEzra E W Cohen
Jan 19, 2013·JAMA Otolaryngology-- Head & Neck Surgery·Arild André ØsthusHans J Aarstad
Dec 10, 2013·Head & Neck·Jolie RingashJohn Ridge
Jul 22, 2014·The Journal of Pain : Official Journal of the American Pain Society·Cielito C Reyes-GibbyEhab Y Hanna
Aug 12, 2014·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Annette J van NieuwenhuizenIrma M Verdonck-de Leeuw
Sep 30, 2014·Oral Oncology·Annette J van NieuwenhuizenIrma M Verdonck-de Leeuw
Dec 19, 2014·BMC Cancer·Andrew Robert NessUNKNOWN Head and Neck 5000 Study Team
Jul 15, 2015·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Chan Joo YangSang Yoon Kim
Jul 26, 2015·Oral Oncology·Shrinivas RathodJolie Ringash
Sep 10, 2015·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Barbara A Murphy, Jie Deng
Sep 10, 2015·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Jolie Ringash
Oct 1, 2015·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Gemma GattaUNKNOWN EUROCARE Working Group:
Oct 6, 2015·Clinical Otolaryngology : Official Journal of ENT-UK ; Official Journal of Netherlands Society for Oto-Rhino-Laryngology & Cervico-Facial Surgery·A R NessUNKNOWN Head and Neck 5000 Study Team
Oct 31, 2015·Brain, Behavior, and Immunity·Canhua XiaoAndrew H Miller
Feb 14, 2016·BMC Genetics·Cielito C Reyes-GibbySanjay Shete
Feb 27, 2016·Psycho-oncology·Simon DunnePamela Gallagher
Mar 1, 2016·The British Journal of Oral & Maxillofacial Surgery·S N RogersA Kanatas
Mar 17, 2016·South Asian Journal of Cancer·Sujal Mitul Parkar, Mihir N Shah
Mar 25, 2016·Cancer Treatment Reviews·Valentina BressanLoredana Sasso
Jun 9, 2016·Journal of Psychosocial Oncology·Hoda BadrVishal Gupta
Jun 9, 2016·European Journal of Cancer Care·M BalfeL Sharp
Jul 4, 2016·European Journal of Surgical Oncology : the Journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology·J F CarrilloL F Oñate-Ocaña
Aug 11, 2016·The Journal of Nursing Research : JNR·Ching-Rong LinYeur-Hur Lai
Nov 21, 2016·Oral Oncology·Pierre BlanchardSteven J Frank
Dec 6, 2016·JAMA Oncology·UNKNOWN Global Burden of Disease Cancer CollaborationMohsen Naghavi
Dec 14, 2016·European Journal of Surgical Oncology : the Journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology·E M GaneS P O'Leary
Mar 1, 2017·International Journal of Radiation Oncology, Biology, Physics·Jolie Ringash
Mar 5, 2017·Psychoneuroendocrinology·Elisabeth G VichayaRobert Dantzer
Mar 25, 2017·European Journal of Surgical Oncology : the Journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology·M de RidderUNKNOWN Dutch Head and Neck Research Group
Apr 22, 2017·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Sanne Høxbroe MichaelsenChristian von Buchwald
Jun 24, 2017·Disability and Rehabilitation·Carolyn S DewaJeffrey S Hoch
Jun 28, 2017·Nursing Research·Rebecca MaguireLinda Sharp
Jul 10, 2017·Oral Oncology·Meredith GiulianiJolie Ringash
Citations
Oct 15, 2019·Acta Oncologica·J A J DoumaL M Buffart
May 3, 2020·Head & Neck·Victoria W HuangShaun A Nguyen
Apr 8, 2020·Molecular Oncology·Ivan R VogeliusSøren M Bentzen
Jun 5, 2020·Journal of Oral Rehabilitation·Jorine A VermaireCaroline M Speksnijder
Oct 24, 2019·BMC Cancer·I M Verdonck-de LeeuwC R Leemans
Jul 16, 2020·Health Research Policy and Systems·Gordon DugleWilm Quentin
Jun 23, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Angelina M M SantosoUNKNOWN NET-QUBIC consortium
Jul 12, 2020·Current Oncology Reports·Robert P TakesAlfio Ferlito
Sep 5, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·H C MelissantI M Verdonck-de Leeuw
May 7, 2021·Head & Neck·Jorine A VermaireCaroline M Speksnijder
Jun 26, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Jorine A VermaireCaroline M Speksnijder
Nov 21, 2021·Head & Neck·Vitória PiaiUNKNOWN NET-QUBIC Consortium