AmbuFlex: tele-patient-reported outcomes (telePRO) as the basis for follow-up in chronic and malignant diseases

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Liv Marit SchougaardNiels Henrik Ingvar Hjollund

Abstract

A tele-patient-reported outcome (telePRO) model includes outpatients' reports of symptoms and health status from home before or instead of visiting the outpatient clinic. In the generic PRO system, AmbuFlex, telePRO is used to decide whether a patient needs an outpatient visit and is thus a tool for better symptom assessment, more patient-centred care, and more efficient use of resources. Specific PROs are developed for each patient group. In this paper we describe our experiences with large-scale implementations of telePRO as the basis for follow-up in chronic and malignant diseases using the generic PRO system AmbuFlex. The AmbuFlex concept consists of three generic elements: PRO data collection, PRO-based automated decision algorithm, and PRO-based graphical overview for clinical decision support. Experiences were described with respect to these elements. By December 2015, AmbuFlex was implemented in nine diagnostic groups in Denmark. A total of 13,135 outpatients from 15 clinics have been individually referred. From epilepsy clinics, about 70 % of all their outpatients were referred. The response rates for the initial questionnaire were 81-98 %. Of 8256 telePRO-based contacts from epilepsy outpatients, up to 48 % were handl...Continue Reading

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Citations

Jan 25, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Carolyn E Schwartz, Dennis A Revicki
Oct 18, 2016·Current Opinion in Nephrology and Hypertension·Simon D S Fraser, Maarten W Taal
Nov 7, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Olalekan Lee Aiyegbusi
Aug 15, 2017·Current Opinion in Nephrology and Hypertension·Olalekan L AiyegbusiMelanie Calvert
Jan 5, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Liv Marit Valen SchougaardNiels Henrik Hjollund
May 17, 2019·Current Oncology Reports·Mette Moustgaard JeppesenPernille T Jensen
May 1, 2019·Healthcare·Alan LevitonTobias Loddenkemper
Sep 22, 2018·Journal of Patient-reported Outcomes·Caroline Trillingsgaard MejdahlKirsten Lomborg
Sep 8, 2018·Health and Quality of Life Outcomes·Liv Marit Valen SchougaardDavid Høyrup Christiansen
Jan 11, 2020·Journal of Patient-reported Outcomes·Caroline Trillingsgaard MejdahlKirsten Lomborg
Oct 2, 2019·Journal of Medical Internet Research·Niels Henrik I Hjollund
Sep 25, 2020·Journal of the American Medical Informatics Association : JAMIA·Julie GandrupWilliam G Dixon
Jan 9, 2021·Journal of Cancer Survivorship : Research and Practice·Cathrine Lundgaard RiisKarina Dahl Steffensen
Apr 21, 2020·Best Practice & Research. Clinical Rheumatology·Annette de ThurahJette Primdahl
Mar 8, 2021·BMC Medical Informatics and Decision Making·Wim van BiesenJohan Decruyenaere
Sep 18, 2021·Journal of Patient-reported Outcomes·Amalie Søgaard NielsenLisa Hanna

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Software Mentioned

PatientViewpoint
telePRO
KLIK
AmbuFlex

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