Amyotrophic lateral sclerosis-specific quality of life-short form (ALSSQOL-SF): A brief, reliable, and valid version of the ALSSQOL-R

Muscle & Nerve
S H FelgoiseZachary Simmons

Abstract

The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.

References

Mar 1, 1990·Psychological Bulletin·P M Bentler
Jan 1, 1990·Health Affairs·W DeJong, J A Winsten
Feb 27, 2001·Neurology·R A RobbinsS Fischer
Jul 24, 2001·Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders : Official Publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases·B R BrooksUNKNOWN World Federation of Neurology Research Group on Motor Neuron Diseases
Dec 24, 2002·Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders : Official Publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases·L H GoldsteinP N Leigh
May 14, 2003·Neurology·Susan M WalshZachary Simmons
Sep 30, 2004·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Barbara A BremerStephanie H Felgoise
Feb 1, 1985·Journal of Personality Assessment·E DienerS Griffin
May 1, 1993·Trends in Endocrinology and Metabolism : TEM·T A Stewart
Sep 2, 2009·Psychological Methods·Carlos G Forero, Alberto Maydeu-Olivares
Nov 20, 2009·Amyotrophic Lateral Sclerosis : Official Publication of the World Federation of Neurology Research Group on Motor Neuron Diseases·Stephanie H FelgoiseZachary Simmons
Mar 20, 2010·Amyotrophic Lateral Sclerosis : Official Publication of the World Federation of Neurology Research Group on Motor Neuron Diseases·Stephanie H FelgoiseZachary Simmons
May 18, 2010·Journal of Stroke and Cerebrovascular Diseases : the Official Journal of National Stroke Association·Thomas M HemmenPatrick D Lyden
May 9, 2012·The Australian and New Zealand Journal of Psychiatry·Shikha MarkandayMichael Berk
Dec 17, 2014·Neurotherapeutics : the Journal of the American Society for Experimental NeuroTherapeutics·Zachary Simmons
Oct 29, 2015·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Helen E StephensZachary Simmons
Apr 1, 1990·Multivariate Behavioral Research·J H Steiger
Apr 21, 2016·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Stephanie H FelgoiseZachary Simmons

❮ Previous
Next ❯

Citations

Oct 31, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Maisa Vitória GayosoGuilherme Antonio Moreira de Barros
Jul 1, 2020·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Carolyn A YoungUNKNOWN TONiC study group
May 18, 2020·Muscle & Nerve·Raghav GovindarajanZachary Simmons
May 13, 2020·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Kate T BrizziJames D Berry
May 5, 2021·Palliative & Supportive Care·Filipe Gonçalves, Bruno Magalhães
Sep 30, 2020·Rehabilitation Nursing : the Official Journal of the Association of Rehabilitation Nurses·Juyeon Oh, Jung A Kim
Sep 30, 2021·The American Journal of Hospice & Palliative Care·Anish SethiSam Maiser
Jan 23, 2022·Health and Quality of Life Outcomes·Susan L HartmaierShreya Davé

❮ Previous
Next ❯

Related Concepts

Related Feeds

Amyloid Lateral Sclerosis

Amyotrophic Lateral Sclerosis (ALS) is a progressive nervous system disease associated with the death of neurons that control voluntary muscles. Discover the latest research on ALS here.