An assessment of the general public's knowledge of fatal fetal anomalies

Prenatal Diagnosis
Stacey PowerK O'Donoghue

Abstract

The objective of the study is to evaluate the general population's knowledge of fatal fetal anomaly (FFA). Descriptive statistics were utilised to describe the data. Chi-square tests assessed associations with knowledge of FFA, termination of pregnancy (TOP) for FFA, and perinatal palliative care (PPC). Nine hundred seventy adults of the Irish population selected by random digit dialling with 83.9% (n = 814) agreed to partake. Only 30% could correctly define FFA with little knowledge demonstrated regarding the classification of FFA. Almost half of the respondents were unaware that medical intervention was required for survival once born. Half of respondents stated that they did not know if PPC could commence at diagnosis, once the baby reached 24 weeks or not until the baby was born alive. One in 5 had knowledge that medical follow-up after TOP for FFA was available, and a third were unaware that bereavement care was available following a TOP for FFA. This study identifies lack of accurate knowledge on FFA, its classification, diagnosis, survival, and supports available following a diagnosis of FFA among the general public. This knowledge deficit highlights the need for improved health information about FFA in antenatal educati...Continue Reading

References

Aug 2, 2001·Journal of Midwifery & Women's Health·C Sakala, M P Corry
Jan 30, 2002·Obstetrics and Gynecology·Kenneth B SchechtmanSteven M Rothman
Dec 25, 2004·Ultrasound in Obstetrics & Gynecology : the Official Journal of the International Society of Ultrasound in Obstetrics and Gynecology·E GarneI Barisic
Feb 14, 2006·Revue D'épidémiologie Et De Santé Publique·H DolkF Bianchi
Dec 10, 2009·The American Journal of Bioethics : AJOB·Angela BallantyneRichard Ashcroft
Jan 1, 2010·Mayo Clinic Proceedings·Yves LongtinDidier Pittet
Apr 14, 2010·The Journal of Maternal-fetal & Neonatal Medicine : the Official Journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians·Claire IrvingNicholas D Embleton
Sep 9, 2010·Advances in Experimental Medicine and Biology·Helen DolkEster Garne
Dec 18, 2010·Journal of Perinatology : Official Journal of the California Perinatal Association·A M CourtwrightM W Doron
Dec 24, 2010·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Janneke E ElberseJacqueline E W Broerse
Feb 16, 2011·Circulation·Helen DolkUNKNOWN European Surveillance of Congenital Anomalies (EUROCAT) Working Group
Mar 8, 2011·Birth Defects Research. Part A, Clinical and Molecular Teratology·Babak KhoshnoodUNKNOWN EUROCAT Working Group
Apr 21, 2011·Acta Obstetricia Et Gynecologica Scandinavica·Tanja Roien JakobsenAnn Tabor
Jun 11, 2011·Prenatal Diagnosis·Yves Ville
Jul 26, 2012·BJOG : an International Journal of Obstetrics and Gynaecology·D J C WilkinsonL De Crespigny
Jun 12, 2014·European Journal of Pediatrics·Daragh FinnEugene M Dempsey
Sep 10, 2014·Seminars in Fetal & Neonatal Medicine·Dominic WilkinsonVicki Xafis
Mar 30, 2016·BMC Pregnancy and Childbirth·Padaphet Sayakhot, Mary Carolan-Olah
Apr 12, 2016·Acta Obstetricia Et Gynecologica Scandinavica·Amelie MadeufEric Verspyck
Aug 23, 2016·Ultrasound in Obstetrics & Gynecology : the Official Journal of the International Society of Ultrasound in Obstetrics and Gynecology·J N KarimA T Papageorghiou
Jul 12, 2017·Maternal and Child Health Journal·Marine BourdensBarthélémy Tosello
Nov 14, 2017·Health Information and Libraries Journal·Sudabeh KamaliKambiz Bahaadinbeigy

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Citations

Jan 9, 2020·Prenatal Diagnosis·Stacey PowerKeelin O'Donoghue

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