An asymmetric burden: Experiences of men and women as caregivers of people with psycho-social disabilities in rural North India

Transcultural Psychiatry
Kaaren MathiasIsabel Goicolea

Abstract

Caring for a family member with a psycho-social disability can be both rewarding and burdensome. This study analyses the experiences of caregivers of people with psychosocial disabilities (PPSDs) in rural communities in North India using relational gender theory. In-depth interviews with 18 female and male caregivers of PPSDs probed the social, emotional and health impacts of their caregiving role. Nine themes were identified that were grouped under three meta-themes: intra-personal, inter-personal and institutional impacts. Under the intra-personal meta-theme, all caregivers experienced high tension, with women describing almost overwhelming stress. Women minimised their role as caregivers, and felt negative and hopeless about their futures, while men had a more positive view of the future and themselves. Embodied experiences of psychological and social distress were consistently described by women, but not by men. Within the interpersonal meta-theme, men experienced opportunity for social connection and social support that was seldom available to women. Interpersonal violence with other household members was described by both men and women. Within the institutional meta-theme, both men and women described strength in unity, a...Continue Reading

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Citations

Oct 22, 2019·Global Public Health·Senait GhebrehiwetChristina P C Borba
Apr 13, 2020·Neurological Sciences : Official Journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology·Francesca G MagnaniDavide Sattin
Apr 26, 2020·Community Mental Health Journal·Michelle KermodeKaaren Mathias
Mar 18, 2021·Ciência & saúde coletiva·Erika Barbara Abreu Fonseca ThomazRejane Christine de Sousa Queiroz

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