An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis.

The Patient
Kara Schick-MakaroffJoanne Greenhalgh

Abstract

There is international interest on the use of patient-reported outcomes (PROs) in nephrology. Our objectives were to develop a kidney-specific program theory about use of PROs in nephrology that may enhance person-centered care, both at individual and aggregated levels of care, and to test and refine this theory through a systematic review of the empirical literature. Together, these objectives articulate what works or does not work, for whom, and why. Realist synthesis methodology guided the electronic database and gray literature searches (in January 2017 and October 2018), screening, and extraction conducted independently by three reviewers. Sources included all nephrology patients and/or practitioners. Through a process of extraction and synthesis, each included source was examined to assess how contexts may trigger mechanisms to influence specific outcomes. After screening 19,961 references, 84 theoretical and 34 empirical sources were used. PROs are proposed to be useful for providing nephrology care through three types of use. The first type is use of individual-level PRO data at point of care, receiving the majority of theoretical and empirical explorations. Clinician use to support person-centered care, and patient use...Continue Reading

References

Apr 1, 1995·Advances in Renal Replacement Therapy·K A Cornell, J Kitsen
Aug 1, 1994·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·K B MeyerA R Davies
Jul 1, 1997·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·R A RettigD L Patrick
May 7, 1999·Advances in Renal Replacement Therapy·P PainterS Carey
Apr 15, 2000·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·E T OberleyP S Alt
Apr 28, 2001·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·D WuerthF O Finkelstein
May 12, 2001·Advances in Renal Replacement Therapy·M B Callahan
Mar 18, 2005·Seminars in Dialysis·Mark L UnruhPaul L Kimmel
Sep 6, 2005·International Urology and Nephrology·Kamyar Kalantar-Zadeh, Mark Unruh
Jan 18, 2006·Advances in Chronic Kidney Disease·Elaine Dec
May 24, 2007·Nature Clinical Practice. Nephrology·Shunichi FukuharaJoseph Green
Oct 2, 2007·Advances in Chronic Kidney Disease·Mark L Unruh, Rachel Hess
Oct 7, 2008·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jose M Valderas, Jordi Alonso
Dec 24, 2008·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Joanne Greenhalgh
Aug 14, 2009·Kidney International·Fredric O FinkelsteinSusan H Finkelstein
May 15, 2010·Kidney International·Fredric O Finkelstein, Susan H Finkelstein
Nov 27, 2010·BMJ : British Medical Journal·Martin Marshall, Vin McLoughlin
May 21, 2011·Clinical Journal of the American Society of Nephrology : CJASN·Allon N Friedman, Stephen Z Fadem
Dec 2, 2011·Journal of Evaluation in Clinical Practice·Elaine L LarsonLisa Saiman
Jan 24, 2012·Clinical Journal of the American Society of Nephrology : CJASN·Alan S KligerFredric O Finkelstein
Jul 24, 2012·Clinical Journal of the American Society of Nephrology : CJASN·John C Stivelman
Aug 8, 2012·Annals of Internal Medicine·Sarah M GreeneEric B Larson
Oct 24, 2012·Nature Reviews. Nephrology·Fredric O FinkelsteinSusan H Finkelstein
Jan 3, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Zoe HildonNick Black
Jan 26, 2013·Nephrology, Dialysis, Transplantation : Official Publication of the European Dialysis and Transplant Association - European Renal Association·M NovakD C Mendelssohn
Aug 31, 2013·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·Ronald D PerroneKlemens B Meyer
Dec 10, 2013·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Maria-Jose Santana, David Feeny
Mar 26, 2014·Postgraduate Medical Journal·Osasuyi Iyasere, Edwina A Brown
May 17, 2014·Clinical Journal of the American Society of Nephrology : CJASN·Ezra Gabbay, Klemens B Meyer
May 17, 2014·Clinical Journal of the American Society of Nephrology : CJASN·Braden MannsAndreas Laupacis
Sep 6, 2014·Clinical Journal of the American Society of Nephrology : CJASN·Fredric O Finkelstein
Sep 23, 2014·International Journal of Nursing Studies·Rafaella Queiroga SoutoPierre Pluye
Jan 23, 2015·Health and Quality of Life Outcomes·Kara Schick-Makaroff, Anita Molzahn
Jan 1, 2014·Canadian Journal of Kidney Health and Disease·Kara Schick-Makaroff, Anita Molzahn
May 20, 2015·Nephrology, Dialysis, Transplantation : Official Publication of the European Dialysis and Transplant Association - European Renal Association·Kate BreckenridgeFergus J Caskey
Sep 1, 2015·Clinical Journal of the American Society of Nephrology : CJASN·Alan S Kliger
Nov 18, 2015·Health Services Research·Mark SchlesingerDale Shaller
Nov 29, 2015·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Nadine AawarSam Salek
Jan 13, 2016·Seminars in Dialysis·Rimda WanchooSteven Fishbane
Jan 13, 2016·Seminars in Dialysis·Adam Saby, Lawrence S Miller
Feb 11, 2016·Seminars in Dialysis·Shan Shan ChenMark Williams
May 14, 2016·Clinical Journal of the American Society of Nephrology : CJASN·Stephanie W OngAlexander G Logan

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.