An exploration of the experience of cancer cachexia: what patients and their families want from healthcare professionals

European Journal of Cancer Care
Joanne ReidTanya McCance

Abstract

The aim of this paper is to investigate the perceptions of patients and family members with regard to care received for cancer cachexia. A qualitative study recruited 27 participants, of which 15 were patients with advanced cancer who had primary cachexia and 12 were family members. Participants were recruited from a regional cancer centre in the UK. All participants took part in a domiciliary interview, which was transcribed verbatim for analysis. A major finding from analysis was 'lack of response from health care professionals' in relation to cancer cachexia management. This finding illuminated that patients and their family members wanted three things from healthcare professionals. They wanted their profound weight loss acknowledged, they wanted information about it and why it was happening and they wanted interventions to deal with it. This paper provides powerful messages for healthcare professionals and highlights the needs of patients and their family regarding cancer cachexia management. Patients and their families want this problem addressed by healthcare professionals. This client group requires supportive healthcare interventions, so that they can understand the nature and impact of this syndrome.

References

Jul 22, 1995·BMJ : British Medical Journal·N Britten
May 8, 1999·Medicinal Research Reviews·J M Argilés, F J López-Soriano
Apr 3, 2001·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kinta BeaverKaren A. Luker
Jul 27, 2001·International Journal of Nursing Studies·L Lowes, M A Prowse
Nov 17, 2001·Qualitative Health Research·M van Manen
Jan 18, 2002·Journal of Neurology, Neurosurgery, and Psychiatry·K W RammohanH N Nagaraja
Feb 1, 2003·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Michael J Tisdale
Jul 2, 2003·Journal of the American College of Surgeons·Neil MacDonaldVickie E Baracos
Jul 31, 2003·Biological Research for Nursing·Donna O McCarthy
Oct 8, 2003·Patient Education and Counseling·J B BrownC L McWilliam
Nov 14, 2003·Molecular Cancer·Marcus E MartignoniHelmut Friess
Aug 31, 2004·Palliative Medicine·Max Dahele, K C H Fearon
Nov 17, 2004·International Journal of Food Sciences and Nutrition·K UsharaniJamuna Prakash
Jul 19, 2005·The British Journal of Nutrition·Chen Bing
Jul 21, 2005·Journal of Wound, Ostomy, and Continence Nursing : Official Publication of the Wound, Ostomy and Continence Nurses Society·Susan McClement
Jul 27, 2005·Nutrition·Josep M ArgilésFrancisco J López-Soriano
Nov 23, 2005·British Journal of Community Nursing·Laureen Hemming, David Maher
Nov 30, 2005·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Maurizio MuscaritoliFilippo Rossi Fanelli
Apr 25, 2006·Journal of Advanced Nursing·Jane HopkinsonJessica Corner
Apr 25, 2006·Journal of Pain and Symptom Management·Jane Hopkinson, Jessica Corner
Mar 17, 2007·International Journal of Palliative Nursing·Ros Hinsley, Rhidian Hughes
Sep 14, 2007·International Journal of Palliative Nursing·Ann Dewey, Taraneh Dean
Apr 17, 2008·International Journal of Palliative Nursing·Ann Dewey, Taraneh Dean
Jul 30, 2008·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Deepta ChurmColette Hawkins
Dec 17, 2008·International Journal of Nursing Studies·Joanne ReidTanya McCance

❮ Previous
Next ❯

Citations

Feb 27, 2013·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Monica P ParmarR Thomas Jagoe
Nov 20, 2012·Journal of Pain and Symptom Management·Rolf OberholzerFlorian Strasser
Aug 15, 2012·Health Policy·Jan GaertnerStephanie Stock
Jan 3, 2013·European Journal of Cancer Care·C MillarS Porter
Apr 17, 2014·Journal of Cachexia, Sarcopenia and Muscle·Jane B Hopkinson
Jul 3, 2015·Journal of Cachexia, Sarcopenia and Muscle·Christine CooperAlex Molassiotis
Apr 23, 2013·Journal of Pain and Symptom Management·Hanspeter HäneFlorian Strasser
Oct 4, 2014·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·C CooperAlex Molassiotis
Oct 29, 2013·Oncology Nursing Forum·Claire MillarSam Porter
Dec 24, 2017·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Ola Magne VagnildhaugTora Skeidsvoll Solheim
Mar 9, 2012·International Journal of Palliative Nursing·Frances WatkinsCarmel McCarthy
Mar 5, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Celina F EstacioJosephine M Clayton
Feb 5, 2019·Current Oncology Reports·Joanne ReidPeter Martin
Aug 25, 2010·Annual Review of Medicine·Shontelle DodsonMitchell S Steiner
Apr 25, 2019·American Journal of Physiology. Regulatory, Integrative and Comparative Physiology·Jessica L HalleAndy V Khamoui
Aug 22, 2014·Current Opinion in Supportive and Palliative Care·Joanne Reid
Oct 27, 2016·Current Opinion in Supportive and Palliative Care·Matthew MaddocksKen C H Fearon
Sep 25, 2020·Advances in Nutrition·Clare McKeaveneyJoanne Reid
Aug 5, 2020·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Jiaojiao SuoJiang Zhu
Oct 30, 2020·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Nora LizeSandra Beijer
Dec 18, 2020·Frontiers in Physiology·Justine M WebsterRamon C J Langen
Jun 16, 2021·Cell Biochemistry and Function·Nishant P VisavadiyaAndy V Khamoui
Jun 20, 2021·ESMO Open·J ArendsUNKNOWN ESMO Guidelines Committee. Electronic address: clinicalguidelines@esmo.org
Jun 29, 2021·Journal of Patient Experience·Vanessa C VaughanPeter Martin
Jun 10, 2011·Current Opinion in Oncology
Jan 18, 2022·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Federico BozzettiMichela Zanetti

❮ Previous
Next ❯

Related Concepts

Related Feeds

Cardiac Cachexia

Cardiac cachexia is a syndrome associated with the progressive loss of muscle and fat mass. It most commonly affects patients with heart failure and can significantly decrease the quality of life and survival in these patients. Here is the latest research on cardiac cachexia.

Cachexia & Brown Fat

Cachexia is a condition associated with progressive weight loss due to severe illness. In cancer patients, it is proposed to occur as a result of tumor-induced energy wasting. Several proteins have been implicated in browning and depletion of white adipose tissue. Here is the latest research on cachexia and brown fat.