Applying FAIR Principles to Improve Data Searchability of Emergency Department Datasets: A Case Study for HCUP-SEDD.

Methods of Information in Medicine
Karishma BhatiaIndra Neil Sarkar

Abstract

There is a recognized need to improve how scholarly data are managed and accessed. The scientific community has proposed the findable, accessible, interoperable, and reusable (FAIR) data principles to address this issue. The objective of this case study was to develop a system for improving the FAIRness of Healthcare Cost and Utilization Project's State Emergency Department Databases (HCUP's SEDD) within the context of data catalog availability. A search tool, EDCat (Emergency Department Catalog), was designed to improve the "FAIRness" of electronic health databases and tested on datasets from HCUP-SEDD. ElasticSearch was used as a database for EDCat's search engine. Datasets were curated and defined. Searchable data dictionary-related elements and unified medical language system (UMLS) concepts were included in the curated metadata. Functionality to standardize search terms using UMLS concepts was added to the user interface. The EDCat system improved the overall FAIRness of HCUP-SEDD by improving the findability of individual datasets and increasing the efficacy of searches for specific data elements and data types. The databases considered for this case study were limited in number as few data distributors make the data dict...Continue Reading

References

Jan 8, 2010·Academic Emergency Medicine : Official Journal of the Society for Academic Emergency Medicine·Jon Mark HirshonLinda F McCaig
Dec 15, 2012·Genetic Testing and Molecular Biomarkers·Monica Gonzalez, Sharon F Terry
Mar 16, 2016·Scientific Data·Mark D WilkinsonBarend Mons

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Citations

Jul 3, 2020·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Nianyang WangJie Chen
Feb 23, 2021·Methods of Information in Medicine·Carlos Luis Parra-CalderónLeslie D McIntosh

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