Are Expert Patients an Untapped Resource for ART Provision in Sub-Saharan Africa?

AIDS Research and Treatment
Tom DecrooFreya Rasschaert

Abstract

Since the introduction of antiretroviral treatment, HIV/AIDS can be framed as a chronic lifelong condition, requiring lifelong adherence to medication. Reinforcement of self-management through information, acquisition of problem solving skills, motivation, and peer support is expected to allow PLWHA to become involved as expert patients in the care management and to decrease the dependency on scarce skilled medical staff. We developed a conceptual framework to analyse how PLWHA can become expert patients and performed a literature review on involvement of PLWHA as expert patients in ART provision in Sub-Saharan Africa. This paper revealed two published examples: one on trained PLWHA in Kenya and another on self-formed peer groups in Mozambique. Both programs fit the concept of the expert patient and describe how community-embedded ART programs can be effective and improve the accessibility and affordability of ART. Using their day-to-day experience of living with HIV, expert patients are able to provide better fitting solutions to practical and psychosocial barriers to adherence. There is a need for careful design of models in which expert patients are involved in essential care functions, capacitated, and empowered to manage t...Continue Reading

References

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Citations

Feb 23, 2013·Journal of Acquired Immune Deficiency Syndromes : JAIDS·Elvin H GengJeffrey N Martin
Jan 18, 2013·HIV/AIDS : Research and Palliative Care·Michael L Scanlon, Rachel C Vreeman
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Mar 21, 2019·Journal of the International AIDS Society·Kornelia FlämigRemco van de Pas
Dec 9, 2015·Journal of the International AIDS Society·Rebecca MathesonAditi Sharma
Jan 1, 2015·Journal of the International AIDS Society·Manjulaa NarasimhanMarlène Bras
May 29, 2019·The Journal of the Association of Nurses in AIDS Care : JANAC·Malia DuffyUgochukwu Amanyeiwe

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