Are Informal Caregivers of Persons With Dementia Open to Extending Medical Aid in Dying to Incompetent Patients? Findings From a Survey Conducted in Quebec, Canada

Alzheimer Disease and Associated Disorders
Gina BravoLieve Van den Block

Abstract

Euthanasia is a controversial and complex issue, especially when involving incompetent patients. On December 10, 2015, Quebec became the first Canadian province to give access to medical aid in dying (MAiD) (ie, euthanasia performed by a physician) to competent patients who satisfy strictly defined criteria. Less than 2 years later, Quebec is considering extending MAiD to incompetent patients who made an advance request. With the objective of contributing scientific data to current societal debates, we conducted a survey among 471 informal caregivers of persons with dementia, reached through Alzheimer Societies. We used a series of vignettes featuring a person with Alzheimer disease to investigate respondents' attitudes towards MAiD. The response rate was 69%. Two-thirds [68%; 95% confidence interval, 63%-73%] found it acceptable to extend MAiD to an incompetent patient at an advanced stage of Alzheimer disease who had made a written request while competent, and 91% (95% confidence interval, 87%-94%) found it acceptable at the terminal stage. Self-determination was the most widely endorsed argument in favor of access to MAiD for incompetent patients. Findings suggest strong support among informal caregivers for extending MAiD t...Continue Reading

References

Mar 1, 1983·Journal of Epidemiology and Community Health·F D Liddell
Oct 7, 2004·Journal of Medical Ethics·J J M van Delden
Aug 20, 2005·Journal of the American Geriatrics Society·Mette L RurupPaul J van der Maas
Apr 25, 2007·The American Journal of Bioethics : AJOB·Cees M P M HertoghJan A Eefsting
Oct 16, 2009·The New England Journal of Medicine·Susan L MitchellMary Beth Hamel
Sep 18, 2010·Journal of Alzheimer's Disease : JAD·Jenny T van der Steen
Jan 4, 2012·Annals of Internal Medicine·Susan L MitchellR Sean Morrison
Jun 28, 2013·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·Paul T Menzel, Bonnie Steinbock
Feb 20, 2015·Journal of Medical Ethics·Eva Elizabeth BoltBregje D Onwuteaka-Philipsen
Jan 24, 2017·Palliative & Supportive Care·Jenny T van der SteenBregje D Onwuteaka-Philipsen

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Citations

Aug 25, 2020·Omega·Nidup DorjiDolores Angela Castelli Dransart
Nov 28, 2019·BJGP Open·Jasper Cleemput, Birgitte Schoenmakers
Jun 7, 2021·Neurología : publicación oficial de la Sociedad Española de Neurología·J M Trejo-Gabriel-Galán

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BETA
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