Are on-line patient portals meeting test result preferences of caregivers of children with cancer? A qualitative exploration

Pediatric Blood & Cancer
Corinna L Schultz, Melissa A Alderfer

Abstract

Management of pediatric cancer entails frequent laboratory and radiology testing to monitor response to treatment, side effects, and possible relapse of disease. Little is known about how caregivers of children with cancer would like to receive results of these tests and whether on-line patient portals may meet those preferences. One-on-one semistructured interviews were conducted with 19 caregivers of children with cancer purposively sampled for breadth on demographic characteristics. Inductive qualitative content coding/analysis was utilized to distill caregiver's preferred methods for test result acquisition and their views of using an on-line patient portal to do so. The relative prioritization of speed of information and mode of communication (i.e., "in person," by phone, etc.) revealed three preference styles. Factors including type of testing, type of result, and the time course within their child's care modified these preferences, and the desire to reduce anxiety played a central role. Caregivers recognized advantages of portal use including getting results "fast," being able to visualize trends in results, "keeping a record," and not interfering with clinic flow. Perceived disadvantages included the results being "comp...Continue Reading

References

Oct 14, 2005·Journal of the American Medical Informatics Association : JAMIA·Saul N WeingartDaniel Z Sands
Mar 27, 2009·The New England Journal of Medicine·Ashish K JhaDavid Blumenthal
Apr 7, 2010·Journal of the American College of Radiology : JACR·Annette J JohnsonDoug Easterling
Apr 7, 2010·Health Affairs·Catherine M DesRochesAshish K Jha
Sep 3, 2010·BMC Medical Informatics and Decision Making·David WiljerPamela Catton
Apr 4, 2012·Journal of the American College of Radiology : JACR·Annette J JohnsonRichard M Frankel
Oct 3, 2012·Annals of Internal Medicine·Tom DelbancoSuzanne G Leveille
Apr 2, 2013·The Journal of Pediatrics·Maria T BrittoJennifer Knopf Munafo
Apr 17, 2013·Pediatrics·Mari M NakamuraAshish K Jha
May 18, 2013·Academic Pediatrics·Tara KettererIman Sharif
Jul 12, 2013·Journal of Pediatric Psychology·Melissa K Cousino, Rebecca A Hazen
Sep 24, 2013·Health Informatics Journal·Terri L ByczkowskiMaria T Britto
Jan 31, 2014·Journal of Neuro-oncology·Jennifer E CahillTerri S Armstrong
Mar 29, 2014·BMC Musculoskeletal Disorders·Rosalie van der VaartMart A F J van de Laar
May 6, 2014·Maternal and Child Health Journal·H A van OersM A Grootenhuis
May 20, 2014·Journal of the American College of Radiology : JACR·Michael A BrunoStephen D Brown
Jul 10, 2014·Journal of Oncology Practice·David E GerberSimon J Craddock Lee
Jan 13, 2015·Journal of Traumatic Stress Disorders & Treatment·Felicity W K HarperLouis A Penner
Jan 16, 2015·Applied Clinical Informatics·A WrightD W Bates
Jan 27, 2015·European Psychiatry : the Journal of the Association of European Psychiatrists·F MuscaraV A Anderson
Apr 15, 2015·Journal of the American College of Radiology : JACR·Andrew B Rosenkrantz, Eric R Flagg
Apr 22, 2015·Journal of the American College of Radiology : JACR·Miguel CabarrusAliya Qayyum
May 7, 2015·Journal of General Internal Medicine·Samuel K ShultzPeter Cram
May 16, 2015·Indian Journal of Pediatrics·Ankush K KhannaSomashekhar M Nimbalkar
Jun 6, 2015·Journal of the American College of Radiology : JACR·Dan HenshawJoanne Tsai
Jul 21, 2015·Journal of the Association for Information Science and Technology·Mary McNamaraAlex A T Bui
Jan 6, 2017·CA: a Cancer Journal for Clinicians·Rebecca L SiegelAhmedin Jemal

❮ Previous
Next ❯

Citations

Sep 29, 2021·Pediatric Blood & Cancer·Corinna L SchultzMelissa A Alderfer

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.