Abstract
We examined the degree to which newly diagnosed patients with advanced lung cancer wanted to be informed and involved in medical decision-making, and whether the patients felt their preferences were met. Patients from 13 hospitals in Flanders were interviewed with a standard questionnaire. A total of 128 patients (68%) participated. Of the patients who wanted to be informed about life expectancy, half (53%) reported they were informed, and of those who wanted to be informed about palliative care and end-of-life decisions, 25% and 31% said they were informed, respectively. With regard to participation in medical decision-making (in general, about treatment, transfer or end-of-life), patients who preferred the doctor to make decisions or those who preferred to make the decision themselves often achieved this (in their perception), while patients who wanted an in-between position with some involvement, often did not. To conclude, preferences of patients with lung cancer for information concerning delicate topics and for shared decision-making with the physician were not well met.
References
Jan 1, 1987·Journal of Chronic Diseases·M E CharlsonC R MacKenzie
Dec 1, 1982·American Journal of Clinical Oncology·M M OkenP P Carbone
Mar 3, 1993·Journal of the National Cancer Institute·N K AaronsonJ C de Haes
Oct 1, 1996·Cancer Nursing·B Barry, A Henderson
May 14, 1997·JAMA : the Journal of the American Medical Association·L F DegnerB Mueller
Jun 16, 1999·Social Science & Medicine·J S KutnerP L Barton
Mar 16, 2000·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·M Extermann
Apr 3, 2001·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kinta BeaverKaren A. Luker
May 16, 2001·Social Science & Medicine·M GattellariM H Tattersall
Jan 5, 2002·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·K SoothillM B McIllmurray
Jan 12, 2002·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Melina GattellariMartin H N Tattersall
Mar 8, 2002·European Journal of Cancer Care·E RamfeltG Nordström
Aug 13, 2002·Hematology/oncology Clinics of North America·Martin H N TattersallJosephine M Clayton
May 28, 2003·Patient Education and Counseling·Hanneke de Haes, Nelleke Koedoot
Feb 28, 2004·Health and Quality of Life Outcomes·Kuang-Yi Wen, David H Gustafson
Jan 13, 2005·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Josephine M ClaytonMartin H N Tattersall
Jan 26, 2005·Psycho-oncology·Thomas F HackLuella Sinha
Jun 1, 2005·Social Science & Medicine·Christine M Gaston, Geoffrey Mitchell
Sep 16, 2005·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Mogens GroenvoldUNKNOWN EORTC Quality of Life Group
Dec 22, 2005·Patient Education and Counseling·Donald J Kiesler, Stephen M Auerbach
Jul 25, 2006·Patient Education and Counseling·Hanneke de Haes
Jan 9, 2008·Patient Education and Counseling·Reginald DeschepperLuc Deliens
Jun 12, 2008·Breast Cancer Research and Treatment·L J Fallowfield
Oct 28, 2008·Palliative Medicine·S Innes, S Payne
Nov 26, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Christopher K Daugherty, Fay J Hlubocky
Citations
Apr 26, 2012·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·David WiljerSara Urowitz
Dec 19, 2012·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Roma MaguireLynn Irvine
Feb 27, 2013·Journal of Palliative Medicine·Olga HussonLonneke V van de Poll-Franse
Apr 9, 2014·BMC Medical Informatics and Decision Making·Linda BromBregje D Onwuteaka-Philipsen
Oct 6, 2015·American Journal of Respiratory and Critical Care Medicine·Joanna L HartScott D Halpern
Sep 17, 2013·Journal of Pain and Symptom Management·Antonio NogueraEduardo Bruera
Mar 20, 2015·Chest·Renda Soylemez WienerJack A Clark
Jul 16, 2015·Journal of Psychosocial Oncology·Deborah WaldropJean S Kutner
Jun 22, 2016·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Eva-Marie KloeppelJutta Huebner
Nov 23, 2016·Journal of Holistic Nursing : Official Journal of the American Holistic Nurses' Association·April L SchmidtLaura McLaughlin
Aug 14, 2013·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Liesbeth M van VlietJozien M Bensing
Apr 19, 2018·Palliative Medicine·Lenzo RobijnUNKNOWN UNBIASED consortium
Nov 8, 2014·The American Journal of Hospice & Palliative Care·Lynn F ReinkeDavid H Au
May 26, 2017·Cancer Nursing·Shih-Ying ChenWoung-Ru Tang
Jan 29, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Mark de MolJoachim G Aerts
Nov 28, 2019·Cancer·Eli Rowe AbernethyRebecca D Pentz
Feb 28, 2020·Journal of General Internal Medicine·Chetna MalhotraEric A Finkelstein
Aug 26, 2020·Psycho-oncology·Jessica K RoydhouseNancy L Keating
Aug 9, 2017·Journal of Psychosocial Oncology·Erin M Ellis, Ashley Varner
Oct 12, 2018·BMC Palliative Care·Sheng-Yu FanI-Mei Lin
Jul 2, 2020·BMC Medical Ethics·Carlos Gómez-VírsedaChris Gastmans
Feb 3, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Samiran IdreesJasmine Heath Hearn
Feb 9, 2021·Journal of Pain and Symptom Management·Jie Jane ChenAileen B Chen
Mar 25, 2021·JCO Clinical Cancer Informatics·Christen R ElledgeSara R Alcorn
Aug 3, 2021·Journal of General Internal Medicine·Emma BjørkCarina Lundby
Jul 11, 2020·Cancer Nursing·Shih-Ying ChenWoung-Ru Tang
Nov 4, 2021·European Journal of Cancer Care·Andy CochranePamela Gallagher
Nov 25, 2021·Praxis·Camilla Janett-Pellegri, And Steffen Eychmüller