PMID: 9530938Apr 8, 1998Paper

Are what people know about their epilepsy and what they want from an epilepsy service related?

Seizure : the Journal of the British Epilepsy Association
Laura H GoldsteinP B Fenwick

Abstract

This study set out to investigate the level of knowledge about epilepsy in general and in relation to the patients' own condition, in patients attending a tertiary referral epilepsy outpatient clinic. It also sought to investigate patient satisfaction with the service and whether knowledge acquired about epilepsy related to that satisfaction. Seventy out of 94 patients responded to the Epilepsy Knowledge Profile Questionnaires (general and personal knowledge of epilepsy) and a questionnaire assessing service satisfaction. Patients were found to know more about epilepsy in general than about their own condition. In particular some patients were unable to give accurate indications of their drug regimes. Over 91% were satisfied with the serviced they received but this bore no relation to information they had acquired or wanted about epilepsy. Multidisciplinary services were requested by a sizeable percentage of patients but especially access to a specialist nurse in epilepsy. The study highlights the need for clinicians to check patients' knowledge about their condition and for further work to clarify the source of patients' satisfaction with service delivery.

References

Jan 22, 1977·Lancet·A Hopkins, G Scambler
Jun 1, 1992·Seizure : the Journal of the British Epilepsy Association·B Chappell
Sep 1, 1992·Seizure : the Journal of the British Epilepsy Association·M HaydenN Buchanan
Jan 1, 1992·Acta Neurologica Scandinavica. Supplementum·T Betts
Apr 13, 1991·BMJ : British Medical Journal·R Fitzpatrick
May 11, 1991·BMJ : British Medical Journal·R Fitzpatrick
Jan 1, 1988·The International Journal of Social Psychiatry·D Davies, G Scambler
Mar 1, 1993·Seizure : the Journal of the British Epilepsy Association·P JainJ I Morrow
Sep 1, 1993·Seizure : the Journal of the British Epilepsy Association·S JarvieM J Brodie
Sep 1, 1993·Seizure : the Journal of the British Epilepsy Association·S JarvieM J Brodie
Feb 1, 1993·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·C DilorioB Manteuffel
Feb 1, 1997·Seizure : the Journal of the British Epilepsy Association·L H GoldsteinP B Fenwick

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Citations

Sep 12, 2003·Seizure : the Journal of the British Epilepsy Association·Lillian LiuMing-Fang Lin
Jan 27, 2004·Seizure : the Journal of the British Epilepsy Association·Arif Rajpura, Su Sethi
Mar 7, 2002·Epilepsia·S Al-AdawiA Al-Hussaini
Jul 7, 2001·Epilepsia·S SpectorL H Goldstein
Aug 7, 2008·Health Education Research·Colleen DiIorioBethany Wexler
Jan 20, 2011·Journal of Paediatrics and Child Health·Claire K FrizzellAnn M E Bye
Jun 7, 2000·Epilepsia·L LongC T Pickering
Feb 13, 2003·Epilepsia·Julie DoughtyVirginie Lavaud
Jan 6, 2016·Seizure : the Journal of the British Epilepsy Association·Yifat RothSara Eyal
Apr 8, 2015·Epilepsy & Behavior : E&B·R MameniskieneV Budrys
Jan 8, 2015·Seizure : the Journal of the British Epilepsy Association·Han Uk RyuUNKNOWN Korean QoL in Epilepsy Study Group
Sep 29, 2015·Epilepsy & Behavior : E&B·Sang-Ahm LeeUNKNOWN Korean QoL in Epilepsy Study Group
Feb 8, 2014·Epilepsia·Natalie WiebeSamuel Wiebe
Aug 8, 2015·African Journal of Primary Health Care & Family Medicine·Zamir A GilaniAndrew Ross
Sep 12, 2014·Acta Neurologica Scandinavica·O R ObiakoN Hayatudeen
Aug 1, 2007·Expert Review of Pharmacoeconomics & Outcomes Research·Megan StaffordAndrew Lloyd
Feb 13, 2001·Seizure : the Journal of the British Epilepsy Association·H Kyngäs
Feb 11, 2000·Seizure : the Journal of the British Epilepsy Association·J FoleyC Fox
Dec 9, 2008·Seizure : the Journal of the British Epilepsy Association·Christine ColeAnnabelle Dudley
Dec 24, 2002·Seizure : the Journal of the British Epilepsy Association·Samir Al-AdawiAtsu S S Dorvlo
Jan 17, 2002·Seizure : the Journal of the British Epilepsy Association·L CouldridgeA March
Feb 22, 2001·Seizure : the Journal of the British Epilepsy Association·S Brown, J Bird
May 23, 2002·Seizure : the Journal of the British Epilepsy Association·Nicola MillsMax O Bachmann
Nov 26, 2010·Seizure : the Journal of the British Epilepsy Association·M F CokerC P Doherty
May 21, 2015·Arquivos de neuro-psiquiatria·Priscila Freitas-LimaAmérico Ceiki Sakamoto
Oct 26, 2007·Epilepsy & Behavior : E&B·Cam EscofferyArchana Koganti
Aug 24, 2007·Journal of Child Neurology·Kathryn A O'Hara

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