Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Health & Social Care in the Community
Elizabeth LinDonna S Lero

Abstract

As mental health (MH) care has shifted from institutional settings to the community, families and friends are responsible for providing the majority of the care at home. The substantial literature on the adverse effects experienced by caregivers has focused mainly on psychological morbidity. Less attention has been paid to how caregivers for persons with MH disorders interact with larger social systems and the impacts of factors such as financial strain, lost time from leisure activities, and the availability of health and social services. We conducted a scoping review of MH and other caregiver questionnaires published between 1990 and 2016 to determine whether they addressed four key domains: caregiver work demands, resource needs, resource utilisation and costs. A range of health and social care databases were searched, including MEDLINE and Health and Psychosocial Instruments. After screening for relevance and quality, our search identified 14 instruments addressing elements related to one or more of our domains. Because these instruments covered only a small portion of our domains, we conducted a second targeted search of the general care-giving literature and consulted with experts, identifying an additional 18 instruments...Continue Reading

References

Feb 1, 1991·The Gerontologist·P P VitalianoR D Maiuro
Apr 1, 1990·The Gerontologist·J I KosbergD M Keller
May 1, 1983·Journal of Gerontology·B C Robinson
Dec 1, 1980·The Gerontologist·S H ZaritJ Bach-Peterson
Apr 1, 1981·The British Journal of Psychiatry : the Journal of Mental Science·S Pai, R L Kapur
Jun 1, 1996·Social Psychiatry and Psychiatric Epidemiology·G I SzmuklerS Bloch
Jul 1, 1996·Social Science & Medicine·M J Vernooij-DassenA J Felling
Feb 24, 1998·Stroke; a Journal of Cerebral Circulation·W J Scholte op ReimerG A van den Bos
Mar 26, 1999·Health Affairs·P S ArnoM M Memmott
May 8, 1993·Evaluation & the Health Professions·C A MaceraC H Stoskopf
Sep 24, 1999·Nursing Research·T Bakas, V Champion
Jan 5, 2002·The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences·Ann M SteffenAlbert Bandura
May 25, 2002·Social Psychiatry and Psychiatric Epidemiology·Bettina WittmundMatthias C Angermeyer
Nov 7, 2002·Archives of Internal Medicine·Jennifer L WolffGerard Anderson
Sep 6, 2003·Journal of Psychiatric and Mental Health Nursing·H L ProvencherM Rousseau
Apr 30, 2004·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Tamilyn BakasMarilyn T Oberst
Sep 1, 2004·Journal of Affective Disorders·Bob van WijngaardenMaarten W J Koeter
Oct 27, 2004·Journal of the American Academy of Child and Adolescent Psychiatry·Peter S JensenKaren Wells
Oct 27, 2004·European Psychiatry : the Journal of the Association of European Psychiatrists·M MadianosE Rogakou
Nov 18, 2004·Oncology Nursing Forum·Barbara GivenMohammad Rahbar
Aug 16, 2005·Health Policy·Werner B F BrouwerMarc A Koopmanschap
Jan 26, 2006·Social Psychiatry and Psychiatric Epidemiology·Johannes WancataHans Rittmannsberger
Mar 31, 2006·International Journal of Technology Assessment in Health Care·Denise N GuerrierePeter C Coyte
Aug 11, 2006·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·W B F BrouwerW K Redekop
Aug 25, 2006·Treatments in Respiratory Medicine·Denise N GuerrierePeter C Coyte
Sep 19, 2006·Nursing Research·Tamilyn BakasLinda S Williams
Jun 7, 2007·Current Opinion in Psychiatry·Ronald C KesslerT Bedirhan Ustün
Jul 25, 2007·Clinical Practice and Epidemiology in Mental Health : CP & EMH·Aaltje P D JansenWim A B Stalman
Feb 23, 2008·Health & Social Care in the Community·Denise N GuerrierePeter C Coyte
Apr 18, 2008·Health Policy·Job van ExelWerner Brouwer
Jun 28, 2008·Acta Psychiatrica Scandinavica·M J OstacherUNKNOWN STEP-BD Family Experience Collaborative Study Group
Jul 1, 2008·Social Psychiatry and Psychiatric Epidemiology·Johannes WancataStefan Frühwald
Sep 23, 2008·The American Journal of Nursing·Richard Schulz, Paula R Sherwood
Oct 7, 2008·Health and Quality of Life Outcomes·Kelly K O'BrienAileen M Davis
May 16, 2009·Journal of Affective Disorders·Annie SteeleIgor Galynker
Aug 15, 2009·Schizophrenia Bulletin·Terence V McCannEileen Clark
Jan 5, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Renske J HoefmanWerner B F Brouwer
Feb 25, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Nalin PayakachatScott D Grosse

❮ Previous
Next ❯

Citations

Jul 4, 2020·Health & Social Care in the Community·Abner Weng Cheong PoonRosaleen Ow

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

[Nihon kōshū eisei zasshi] Japanese journal of public health
Hiroko Kunikata, Yoshio Mino
Telemedicine Journal and E-health : the Official Journal of the American Telemedicine Association
Debbie Parker OliverGeorge Demiris
© 2022 Meta ULC. All rights reserved