Assessing health-related quality-of-life in individuals with haemophilia in China

Haemophilia : the Official Journal of the World Federation of Hemophilia
T WangR Yang

Abstract

Haemophilia is a group of inherited, congenital diseases present all through the life. Those disorders are associated with a chronic burden of morbidity punctuated by episodes of acute deterioration in health-related quality-of-life (HR-QL). The significances of assessing HR-QL in individuals with haemophilia as an important component of the clinical database have gained increasing recognition in recent years. To the best of our knowledge, reports on the HR-QL of Chinese patients with haemophilia are not available. The purpose of this paper was to assess the HR-QL of patients with haemophilia in China. In order to do this, 179 patients with haemophilia (age 16-70) were mailed China quality-of-life questionnaire, which was designed specially for this study taking into account the culture characters of Chinese. Compared with the normal male general population, individuals with haemophilia experienced significantly lower levels of HR-QL and within the subgroups of patients, there was a gradation of HR-QL from mild < moderate < severe haemophilia patients. Age, clinical severity, degree of arthropathy, hepatitis status, salary and mean annual expenditure for replacement therapy were predictors of HR-QL. Clinical severity of the dis...Continue Reading

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Citations

May 29, 2009·Haemophilia : the Official Journal of the World Federation of Hemophilia·T M BrownC L Pashos
May 29, 2009·Haemophilia : the Official Journal of the World Federation of Hemophilia·D GlobeUNKNOWN Healthrelated Quality Of Life Expert Working Group Of The International Prophylaxis Study Group
Feb 16, 2006·Haemophilia : the Official Journal of the World Federation of Hemophilia·L ScaloneUNKNOWN COCIS Study Investigators
Jul 22, 2008·Haemophilia : the Official Journal of the World Federation of Hemophilia·M-C Poon, K-H Luke
Apr 4, 2008·Haemophilia : the Official Journal of the World Federation of Hemophilia·H K HartlI Pabinger
Jul 13, 2006·Haemophilia : the Official Journal of the World Federation of Hemophilia·S AzharN Muhammad
Jul 13, 2012·Haemophilia : the Official Journal of the World Federation of Hemophilia·Margareth C OzeloRenchi Yang
Feb 17, 2015·Haemophilia : the Official Journal of the World Federation of Hemophilia·C M ChenS L Hsu
Jun 6, 2009·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Monika BullingerSylvia von Mackensen
Sep 8, 2016·Haemophilia : the Official Journal of the World Federation of Hemophilia·J SunUNKNOWN Chinese HERO study group
Dec 9, 2016·Haemophilia : the Official Journal of the World Federation of Hemophilia·T SalomonS V Peixoto
Nov 21, 2016·Archives of Physical Medicine and Rehabilitation·Rubén Cuesta-BarriusoJosé Antonio López-Pina
Apr 18, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Renchi YangNikki Church

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