Assessing the public's views in research ethics controversies: deliberative democracy and bioethics as natural allies.

Journal of Empirical Research on Human Research Ethics : JERHRE
Scott Y H KimRaymond De Vries

Abstract

In a liberal democracy, policy decisions regarding ethical controversies, including those in research ethics, should incorporate the opinions of its citizens. Eliciting informed and well-considered ethical opinions can be challenging. The issues may not be widely familiar and they may involve complex scientific, legal, historical, and ethical dimensions. Traditional surveys risk eliciting superficial and uninformed opinions that may be of dubious quality for policy formation. We argue that the theory and practice of deliberative democracy (DD) is especially useful in overcoming such inadequacies. We explain DD theory and practice, discuss the rationale for using DD methods in research ethics, and illustrate in depth the use of a DD method for a longstanding research ethics controversy involving research based on surrogate consent. The potential pitfalls of DD and the means of minimizing them as well as future research directions are also discussed.

References

Apr 2, 2002·The American Journal of Psychiatry·Dave WendlerEzekiel Emanuel
May 4, 2004·The American Journal of Psychiatry·Scott Y H KimJason T Olin
Feb 7, 2006·Social Science & Medicine·Jackie Leach ScullyTom W Shakespeare
Jun 10, 2006·Critical Care Medicine·Charles ContantBaruch Brody
Oct 19, 2006·Social Science & Medicine·Laura J DamschroderRodney A Hayward
Apr 3, 2007·Academic Emergency Medicine : Official Journal of the Society for Academic Emergency Medicine·Jill M Baren, Michelle H Biros
Jul 18, 2008·Australia and New Zealand Health Policy·Judy GregoryRebecca Watson
Oct 17, 2008·The American Journal of Psychiatry·Jason KarlawishPamela Sankar
Dec 20, 2008·Social Science & Medicine·David M SeckoMichael M Burgess
Mar 6, 2009·Health Policy·Craig MittonJulia Abelson
Mar 2, 2010·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Scott Y H KimRaymond De Vries

❮ Previous
Next ❯

Citations

Mar 23, 2012·American Journal of Medical Genetics. Part a·Amy A LemkeLainie Friedman Ross
Jul 26, 2012·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·Michael DunnMichael Parker
May 26, 2011·Nature Reviews. Neurology·Scott Y H Kim
Sep 21, 2011·Journal of Empirical Research on Human Research Ethics : JERHRE·Raymond De VriesScott Y H Kim
Jan 23, 2013·Health Care Analysis : HCA : Journal of Health Philosophy and Policy·Malcolm Oswald
Mar 25, 2014·Social Science & Medicine·Jackie StreetAnnette Braunack-Mayer
Apr 18, 2015·BMC Medical Ethics·Rachel DaviesMichael Dunn
Jun 17, 2016·Journal of Genetic Counseling·Michele C GornickRaymond G De Vries
Sep 22, 2016·The Hastings Center Report·Jonathan Ives
Aug 22, 2014·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Laura M BeskowKevin P Weinfurt
Apr 6, 2017·BMC Medical Ethics·Madeleine J MurtaghPaul R Burton
Apr 5, 2017·The Patient·Stephanie R MorainRuth R Faden
Aug 25, 2015·Journal of Empirical Research on Human Research Ethics : JERHRE·Michael Parker, Susan Bull
Aug 11, 2018·Qualitative Health Research·Raymond G De VriesScott Y H Kim
Oct 4, 2018·Clinical Trials : Journal of the Society for Clinical Trials·Francis X Baker, Jon F Merz
Feb 16, 2011·Philosophical Transactions of the Royal Society of London. Series B, Biological Sciences·Felix Riede
Jan 20, 2018·European Journal of Human Genetics : EJHG·Tom TomlinsonScott Y H Kim
Oct 3, 2019·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Reshma JagsiAngela R Bradbury
May 28, 2020·Journal of Medical Ethics·Stacy M Carter
May 26, 2017·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Reshma JagsiAngela R Bradbury
Mar 10, 2015·Journal of Empirical Research on Human Research Ethics : JERHRE·Michele C GornickScott Y H Kim
May 20, 2020·Journal of Medical Ethics·Mark SheehanKamran Shafiq
Jul 11, 2018·BMC Medical Ethics·Jonathan IvesGuy Widdershoven
Oct 24, 2020·JCO Oncology Practice·Rochelle D JonesReshma Jagsi
Dec 3, 2021·JCO Oncology Practice·Rochelle D JonesReshma Jagsi

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.