Assessing Unmet Information Needs of Breast Cancer Survivors: Exploratory Study of Online Health Forums Using Text Classification and Retrieval.

JMIR Cancer
Susan McRoyHongfang Liu

Abstract

Patient education materials given to breast cancer survivors may not be a good fit for their information needs. Needs may change over time, be forgotten, or be misreported, for a variety of reasons. An automated content analysis of survivors' postings to online health forums can identify expressed information needs over a span of time and be repeated regularly at low cost. Identifying these unmet needs can guide improvements to existing education materials and the creation of new resources. The primary goals of this project are to assess the unmet information needs of breast cancer survivors from their own perspectives and to identify gaps between information needs and current education materials. This approach employs computational methods for content modeling and supervised text classification to data from online health forums to identify explicit and implicit requests for health-related information. Potential gaps between needs and education materials are identified using techniques from information retrieval. We provide a new taxonomy for the classification of sentences in online health forum data. 260 postings from two online health forums were selected, yielding 4179 sentences for coding. After annotation of data and trai...Continue Reading

References

May 22, 2007·Journal of Medical Internet Research·Andrea MeierBarbara K Rimer
Jul 26, 2008·Journal of Medical Internet Research·Cornelia F van Uden-KraanMart A F J van de Laar
Jun 16, 2009·Journal of Evaluation in Clinical Practice·Allison BoyesChristophe Lecathelinais
Dec 28, 2010·Japanese Journal of Clinical Oncology·Megumi UchidaToshiaki A Furukawa
Dec 22, 2011·Yonsei Medical Journal·Byeong Woo Park, Sook Yeon Hwang
May 29, 2013·Patient Education and Counseling·Hayeon SongSusan McRoy
Sep 14, 2013·The Patient·Mary S Vaughan SarrazinHeather Schacht Reisinger
Apr 23, 2014·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·C Kwok, K White
May 31, 2016·International Journal of Breast Cancer·Emmanuel Joseph Fong, Whye Lian Cheah

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Citations

Mar 9, 2019·Journal of Oncology Practice·Lauren C HandHeidi S Donovan
May 30, 2020·Cancer Nursing·Rachel HirscheyTimiya S Nolan
Jul 29, 2020·Journal of Medical Internet Research·Hongru LuLizhu Sun
Feb 14, 2020·International Journal of Environmental Research and Public Health·Francesc López SeguíJosep Vidal-Alaball
Jul 25, 2020·JMIR MHealth and UHealth·Antonio Augusto Claudio PereiraTiago Franklin Rodrigues Lucena

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BETA
biopsy

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curl
MetaMap
GloVe
Alexa
Elasticsearch
Amazon Echo
MayoConnect
Weka
deepLearning4Java

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