Attitude of Asian Parkinson Patients towards Clinical Research and Tissue Donation

Parkinson's Disease
Shazma KhanLouis C S Tan

Abstract

The success of clinical research and tissue donation programs are highly dependent on recruitment of willing volunteers. A comprehensive survey of patient preferences and attitudes can help identify and address barriers hindering the recruitment for research. This is a cross-sectional study on 105 Parkinson's disease patients who completed an interviewer-administered questionnaire. Out of 105 respondents, 48% of patients had either already participated in clinical research or were keen to participate. About 80% believed clinical research to be safe for their health and privacy. More than 70% of participants were willing to donate blood, urine, or stool, while 16% were agreeable for cerebrospinal fluid sample donation. Motivating factors for clinical research included altruism (64%) and contribution to advance medical knowledge (64%). Common reasons for unwillingness towards clinical research included the risks involved (43%), time constraints (33%), and mobility challenges (24%). The attitude of Singaporean Parkinson patients toward clinical research and tissue donation is encouraging with about half of the participants willing to support clinical research. Three-quarters of patients would support tissue donations. Participatio...Continue Reading

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Methods Mentioned

BETA
blood collection

Software Mentioned

SPSS

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